Therapeutic metamorphosis: Findings from a grounded theory study of the impact of low-dose prophylaxis in children living with haemophilia in India.

Haemophilia : the Official Journal of the World Federation of Hemophilia
Rohini TVijayakumar Narayana Pillai

Abstract

The clinical benefits of administering low-dose prophylaxis in children with haemophilia are well established. Qualitative research describing the impact of prophylaxis on quality of life is comparatively rare in this area. The aim of this study was to investigate in children the experiences of living and becoming adjusted to haemophilia before prophylaxis, by collecting information directly from children and their parents or guardians. A further goal was to evaluate whether and how the use of low-dose prophylaxis impacts the disease experience. A grounded theory design according to Strauss and Corbin was chosen for this study. The study was conducted in the Haemophilia Treatment Centre at Aluva, Kerala, India and involved nineteen participants (children, mothers, father and grandmothers) who were selected by theoretical sampling. Data were collected through audiotaped interviews, which included demographic and semi-structured interview questions. Data were coded and evolved into concepts and categories that lead to the emergence of theory. The study resulted in the construction of 'Theory of Therapeutic Metamorphosis'. It comprised two stages: stage of bondage (enduring hardships), experienced during the absence of prophylaxis...Continue Reading

References

May 29, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Kate KhairFaith Gibson
Mar 19, 2016·Haemophilia : the Official Journal of the World Federation of Hemophilia·S P VermaK T Harichandra Kumar
May 26, 2017·Haemophilia : the Official Journal of the World Federation of Hemophilia·N SidharthanA Sudhakar
Oct 4, 2017·Expert Review of Hematology·Runhui Wu, Koon Hung Luke

❮ Previous
Next ❯

Related Concepts

Related Feeds

Blood Clotting Disorders

Thrombophilia includes conditions with increased tendency for excessive blood clotting. Blood clotting occurs when the body has insufficient amounts of specialized proteins that make blood clot and stop bleeding. Here is the latest research on blood clotting disorders.

Related Papers

Zhonghua er ke za zhi. Chinese journal of pediatrics
Ling Tang, R Wu
Haemophilia : the Official Journal of the World Federation of Hemophilia
L H SchrijversK Fischer
© 2022 Meta ULC. All rights reserved