Threading the cloak: palliative care education for care providers of adolescents and young adults with cancer

Clinical Oncology in Adolescents and Young Adults
Lori WienerUrsula M Sansom-Daly

Abstract

Medical providers are trained to investigate, diagnose, and treat cancer. Their primary goal is to maximize the chances of curing the patient, with less training provided on palliative care concepts and the unique developmental needs inherent in this population. Early, systematic integration of palliative care into standard oncology practice represents a valuable, imperative approach to improving the overall cancer experience for adolescents and young adults (AYAs). The importance of competent, confident, and compassionate providers for AYAs warrants the development of effective educational strategies for teaching AYA palliative care. Just as palliative care should be integrated early in the disease trajectory of AYA patients, palliative care training should be integrated early in professional development of trainees. As the AYA age spectrum represents sequential transitions through developmental stages, trainees experience changes in their learning needs during their progression through sequential phases of training. This article reviews unique epidemiologic, developmental, and psychosocial factors that make the provision of palliative care especially challenging in AYAs. A conceptual framework is provided for AYA palliative c...Continue Reading

Citations

Jun 30, 2016·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Bibi Hølge-HazeltonCecilie Dyg Sperling
Sep 30, 2016·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Matthew K KnoxGary Rodin
Apr 5, 2018·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Jessica L SpruitMaryjo Prince-Paul
Oct 19, 2017·Health Communication·Leah M Omilion-HodgesMark P Orbe
Dec 20, 2019·The American Journal of Hospice & Palliative Care·Jennifer GabbardMia Yang
Dec 31, 2019·The American Journal of Hospice & Palliative Care·Laura K SedigRaymond Hutchinson
Oct 28, 2016·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Alexis R MunozJohn M Salsman
Jun 21, 2020·Archives of Disease in Childhood·Emma RigbyGill Turner
Jan 14, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Julia BaenzigerUrsula M Sansom-Daly
Feb 20, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Kayla N LaRosaGwendolyn P Quinn
Mar 14, 2020·Hepatology : Official Journal of the American Association for the Study of Liver Diseases·Manisha VermaVictor Navarro
Feb 6, 2020·Palliative Medicine·Wendy G LichtenthalLori Wiener
Jun 12, 2019·Internal Medicine Journal·Ursula M Sansom-DalyRichard J Cohn

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