To be or not to be? A caregiver's question: the lived experience of a stroke family during the first 18 months poststroke

Scandinavian Journal of Caring Sciences
Cheryl L OlivierDianne E Roy

Abstract

Disability following a stroke often requires family, commonly a spouse, to provide care enabling the stroke survivor to return home. Immediate or extended family and friends may help provide direct care or support the primary caregiver. While family members share the common stroke experience, this is lived within the context of separate lives. Research examining the individual nuances, roles and contribution of family and/or friends forming part of collective stroke networks, has largely been overlooked. This New Zealand study aimed to explore the lived experience of three stroke family members during the 18 months following a first-ever stroke. Hermeneutic phenomenology guided the study. Informed consent was obtained prior to individual interviews conducted 6 weeks, 12 months and 18 months poststroke. Three main themes emerged: (i) Being prepared, (ii) Where you stand changes the view and (iii) Relinquishing and reclaiming. Being prepared revealed how these family members anticipated the stroke and drew on personal and professional experience in facing the phenomenon. The second theme showed the influence of expectation and positionality on family members' experiences. Relinquishing and reclaiming identified loss, grief and a ...Continue Reading

References

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Citations

Jul 2, 2020·Revista brasileira de enfermagem·Adriana Bitencourt Magagnin, Ivonete Teresinha Schulter Buss Heidemann

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