To strengthen consensus, consult the stakeholders

Bioethics
Cheryl Cox Macpherson

Abstract

CIOMS has been criticised for not adequately consulting stakeholders about its revised ethical guidelines regarding medical research. Political and logistical issues that arise in democratic processes and open exchange of information probably contributed to this exclusion. What might CIOMS have done to be more inclusive and attain broader consensus on its proposed revisions? Consensus is dynamic, and evolves as a community digests new information and perspectives. Engaging the public (and particularly the stakeholders) in discussion about the revisions would have generated broader consensus. It would have encouraged more stakeholders (i.e. researchers, potential research participants, research institutions, or governments) to buy in. CIOMS needs a process to encourage dialogue and stakeholder input. The CIOMS guidelines themselves promote stakeholder consultation and capacity building, but CIOMS has done relatively little to distribute or promote its own guidelines. CIOMS should do more to promote its revised guidelines, and engage stakeholders in dialogue. This paper explores the bioethics debate about universal and relative values to illustrate the value of consultation and consensus building. It concludes that like research ...Continue Reading

References

Jan 1, 1986·Transactions of the Royal Society of Tropical Medicine and Hygiene·C N MacphersonC Macpherson
Mar 3, 1998·Lancet·J M SwansonD P Cantwell
Oct 20, 2001·Bioethics·Hyakudai Sakamoto
Oct 20, 2001·Kennedy Institute of Ethics Journal·H Tristram Engelhardt
Oct 27, 2001·BMJ : British Medical Journal·J Epping-JordanE Sabaté
Apr 23, 2002·Cambridge Quarterly of Healthcare Ethics : CQ : the International Journal of Healthcare Ethics Committees·Jonathan D Moreno
Jun 1, 2002·BMJ : British Medical Journal·Peter A Singer, Kerry W Bowman

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