Towards deep inclusion for equity-oriented health research priority-setting: A working model

Social Science & Medicine
Bridget PrattAdnan A Hyder

Abstract

Growing consensus that health research funders should align their investments with national research priorities presupposes that such national priorities exist and are just. Arguably, justice requires national health research priority-setting to promote health equity. Such a position is consistent with recommendations made by the World Health Organization and at global ministerial summits that health research should serve to reduce health inequalities between and within countries. Thus far, no specific requirements for equity-oriented research priority-setting have been described to guide policymakers. As a step towards the explication and defence of such requirements, we propose that deep inclusion is a key procedural component of equity-oriented research priority-setting. We offer a model of deep inclusion that was developed by applying concepts from work on deliberative democracy and development ethics. This model consists of three dimensions--breadth, qualitative equality, and high-quality non-elite participation. Deep inclusion is captured not only by who is invited to join a decision-making process but also by how they are involved and by when non-elite stakeholders are involved. To clarify and illustrate the proposed dim...Continue Reading

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Citations

May 18, 2016·Health Research Policy and Systems·Maarten Olivier KokJoost Ruitenberg
Dec 21, 2016·The American Journal of Bioethics : AJOB·Bridget Pratt, Adnan A Hyder
Nov 15, 2017·Health Research Policy and Systems·Maarten Olivier KokElis Joost Ruitenberg
Mar 15, 2019·Journal of Empirical Research on Human Research Ethics : JERHRE·Bridget Pratt
Aug 8, 2018·Health Research Policy and Systems·Fiona Alice MillerWhitney Berta
Sep 1, 2018·Health Research Policy and Systems·Fiona Alice MillerWhitney Berta
Dec 14, 2018·BMC Medical Ethics·Bridget PrattAdnan A Hyder
Aug 26, 2020·Archives of Rehabilitation Research and Clinical Translation·Tiago S JesusUNKNOWN Refugee Empowerment Task Force, International Networking Group of the American Congress of Rehabilitation Medicine
Apr 9, 2021·BMJ Global Health·Vigneshwar R Veerappan, Rahul M Jindal
Nov 9, 2021·Frontiers in Psychiatry·Paul L SimpsonTony Butler

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