Transition of adolescent and young adult patients with childhood-onset chronic kidney disease from pediatric to adult renal services: a nationwide survey in Japan

Clinical and Experimental Nephrology
Motoshi HattoriSeiich Mastuo

Abstract

Transition of adolescent and young adult (AYA) patients with childhood-onset chronic kidney diseases (C-CKD) from pediatric to adult renal services has received increasing attention. However, information on transition of Japanese patients with C-CKD is limited. The Transition Medicine Working Group, in collaboration with the Japanese Society for Nephrology, the Japanese Society for Pediatric Nephrology and the Japanese Society of Pediatric Urology, conducted a retrospective cross-sectional study in 2014 on issues concerning the transition of Japanese patients with C-CKD. Few institutions in Japan had transition programs and/or transition coordinators for patients with C-CKD. Refusal to transfer by patients or their families, lack of concern about transition and inability to decide on transfer were common reasons for non-transfer of patients still followed by pediatric renal services. Around 25 % of patients who had ended or interrupted follow-up by pediatric renal services presented to adult renal services because of symptoms associated with C-CKD. Patients with various types of childhood-onset nephrourological diseases were transferred from pediatric to adult renal services. IgA nephropathy, minimal change nephrotic syndrome a...Continue Reading

References

Nov 1, 1993·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·R W BlumG B Slap
Jun 29, 2000·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·A R Watson
Aug 25, 2001·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·J S Cameron
Oct 2, 2003·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·David S RosenUNKNOWN Society for Adolescent Medicine
Jan 9, 2004·Pediatric Clinics of North America·Janet E McDonagh, Deirdre A Kelly
Jan 1, 2005·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·Alan R Watson
Jul 21, 2009·Seminars in Nephrology·Maria E Ferris, John D Mahan
Jun 19, 2010·Pediatric Transplantation·J E McDonagh, D A Kelly

❮ Previous
Next ❯

Citations

Jul 15, 2017·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·Anna FrancisGermaine Wong
Jan 21, 2020·Pediatrics International : Official Journal of the Japan Pediatric Society·Junko EnomotoShigeru Tateno
Aug 1, 2019·European Journal of Human Genetics : EJHG·Martin KreuzerUNKNOWN Members of the ERKNet Taskforce ‘QoL & Transition’
Jun 7, 2017·Clinical and Experimental Nephrology·Rupesh RainaMaria Ferris
May 29, 2021·Clinical and Experimental Nephrology·Maki UrushiharaUNKNOWN theCommittee for Renal Biopsy and Disease Registry of the Japanese Society of Nephrology

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.