Transition to Adult Care in Children on Long-Term Ventilation

Frontiers in Pediatrics
Alessandro OnofriHui-Leng Tan

Abstract

The number of children on long-term ventilation (LTV) has exponentially increased over the past few decades. Improvements in management of ventilation coupled with improvements in standards of medical care are increasingly allowing young people on LTV to survive into adulthood. The process of transition from the pediatric to the adult healthcare system is challenging and requires special attention. This review aims to provide an overview on transition to adult care for children on LTV. Firstly, examining effective models of transition in other childhood onset chronic conditions as a template, whilst highlighting the unique aspects of transition in LTV patients and secondly, summarizing the main relevant findings in the literature on the topic and emphasizing the importance of a multidisciplinary approach to this process.

References

Nov 1, 1993·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·R W BlumG B Slap
Jan 22, 2004·Chest·James R YankaskasDavid Rodman
Mar 9, 2005·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Eitan KeremConsensus Committee
Feb 23, 2007·American Journal of Physical Medicine & Rehabilitation·Albino PetroneRenato Cutrera
Sep 25, 2010·Journal of the American College of Cardiology·Paul KhairyAriane J Marelli
Mar 18, 2011·The Clinical Respiratory Journal·Susan Joy Towns, Scott C Bell
Oct 8, 2011·Archives of Disease in Childhood. Education and Practice Edition·Helena Gleeson, Gill Turner
Mar 20, 2012·Neuromuscular Disorders : NMD·David AbbottKate Bushby
Apr 24, 2013·Pediatrics·Cesare GregorettiRenato Cutrera
Aug 21, 2013·Early Human Development·Martino PavoneRenato Cutrera
May 7, 2014·Child: Care, Health and Development·E BjörquistI Hallström
May 21, 2014·Heart·Andrew S MackieGwen R Rempel
Feb 18, 2015·Archives of Disease in Childhood·Charlotte Moore HepburnAstrid Guttmann
Jul 5, 2015·Journal of Pediatric Nursing·Ellen McLaughlin Carroll
Oct 27, 2015·Canadian Journal of Diabetes·Sarah Wafa, Meranda Nakhla
Dec 1, 2015·JAMA Pediatrics·Cynthia FairInternational and Interdisciplinary Health Care Transition Research Consortium
Oct 21, 2016·Disability and Health Journal·Nancy BagatellDeborah Thorpe
Jan 10, 2018·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Ruth H KeoghDiana Bilton
Oct 24, 2018·Pediatrics·Patience H WhiteAMERICAN COLLEGE OF PHYSICIANS
Jul 25, 2019·Italian Journal of Pediatrics·Alessandro OnofriRenato Cutrera

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Hereditary Sensory Autonomic Neuropathy

Hereditary Sensory Autonomic Neuropathies are a group of inherited neurodegenerative disorders characterized clinically by loss of sensation and autonomic dysfunction. Here is the latest research on these neuropathies.

Spatio-Temporal Regulation of DNA Repair

DNA repair is a complex process regulated by several different classes of enzymes, including ligases, endonucleases, and polymerases. This feed focuses on the spatial and temporal regulation that accompanies DNA damage signaling and repair enzymes and processes.

Glut1 Deficiency

Glut1 deficiency, an autosomal dominant, genetic metabolic disorder associated with a deficiency of GLUT1, the protein that transports glucose across the blood brain barrier, is characterized by mental and motor developmental delays and infantile seizures. Follow the latest research on Glut1 deficiency with this feed.

Separation Anxiety

Separation anxiety is a type of anxiety disorder that involves excessive distress and anxiety with separation. This may include separation from places or people to which they have a strong emotional connection with. It often affects children more than adults. Here is the latest research on separation anxiety.

KIF1A Associated Neurological Disorder

KIF1A associated neurological disorder (KAND) is a rare neurodegenerative condition caused by mutations in the KIF1A gene. KAND may present with a wide range and severity of symptoms including stiff or weak leg muscles, low muscle tone, a lack of muscle coordination and balance, and intellectual disability. Find the latest research on KAND here.

Regulation of Vocal-Motor Plasticity

Dopaminergic projections to the basal ganglia and nucleus accumbens shape the learning and plasticity of motivated behaviors across species including the regulation of vocal-motor plasticity and performance in songbirds. Discover the latest research on the regulation of vocal-motor plasticity here.