Transitions from child to adult health care for young people with intellectual disabilities: A systematic review

Journal of Advanced Nursing
Michael BrownZoë Chouliara

Abstract

To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice. A systematic review and critical appraisal of qualitative, quantitative, and mixed methods studies. A search of the relevant literature published 2007-2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed, and Science Direct Sociological Abstracts databases. A total of 12 of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesizing the key findings and grouping them into concepts and emergent themes. Four main themes were identified: (a) becoming an adult; (b) fragmented transition process and care; (c) parents as advocates in emotional turmoil; and (d) making transitions happen. The range of issues that have an impact on the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice, and education.

References

Sep 2, 2000·ANS. Advances in Nursing Science·A I MeleisK Schumacher
Jan 5, 2005·Pediatrics·John G ReissLeslie R Walker
Apr 28, 2005·Journal for Specialists in Pediatric Nursing : JSPN·Cecily L Betz, Gay Redcay
Nov 4, 2006·Clinical Medicine : Journal of the Royal College of Physicians of London·Alison Jordan, Janet E McDonagh
Jan 4, 2007·Photomedicine and Laser Surgery·UNKNOWN World Association of Laser Therapy (WALT)
Dec 28, 2010·Nurse Education Today·Kay CaldwellGeorgina Taylor
Mar 11, 2011·Archives of Disease in Childhood·R CrowleyM McKee
Mar 11, 2011·Annals of Neurology·Peter Camfield, Carol Camfield
Jun 7, 2011·Intellectual and Developmental Disabilities·Eric Emerson
Oct 20, 2011·Child: Care, Health and Development·S KingsnorthP Rigby
May 9, 2012·Journal of Pediatric Health Care : Official Publication of National Association of Pediatric Nurse Associates & Practitioners·Rebecca J Schultz
Jul 11, 2012·Journal of Intellectual Disability Research : JIDR·K M Jensen, M M Davis
Aug 28, 2012·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·Jason F WoodwardMary R Ciccarelli
Dec 12, 2012·Journal of Applied Research in Intellectual Disabilities : JARID·Lourdes ReyMargarita Ortiz-Tallo
Mar 19, 2013·International Journal of Older People Nursing·Assumpta RyanEamonn Slevin
Jun 27, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Imelda Coyne
Oct 1, 2014·The Journal of School Nursing : the Official Publication of the National Association of School Nurses·Rachel McClanahan, Penny C Weismuller
Nov 20, 2014·Diabetic Medicine : a Journal of the British Diabetic Association·A M SheehanI Coyne
Sep 27, 2015·World Psychiatry : Official Journal of the World Psychiatric Association (WPA)·Swaran P Singh, Helena Tuomainen
Dec 4, 2015·Disability and Health Journal·Randall OwenAnne Bowers
Apr 30, 2016·The Cochrane Database of Systematic Reviews·Fiona CampbellFaith Gibson
Aug 25, 2016·Journal of Applied Research in Intellectual Disabilities : JARID·Genevieve Young-SouthwardSally-Ann Cooper
Feb 7, 2017·Pediatrics International : Official Journal of the Japan Pediatric Society·Tadashi MatsubasaFumio Endo
Sep 13, 2017·Annals of Family Medicine·Fay J HoskingDerek G Cook
Oct 27, 2017·Journal of Epidemiology and Community Health·Laura Anne Hughes-McCormackSally-Ann Cooper

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Citations

Mar 12, 2019·The Cochrane Database of Systematic Reviews·Esmee Cm KooijmansMargreet A Veening
Feb 2, 2022·Intellectual and Developmental Disabilities·Kerri BirkettAndrea Paulson

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