Translation and cross-cultural adaptation of eight pediatric PROMIS® item banks into Spanish and German

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
J DevineUlrike Ravens-Sieberer

Abstract

The Patient-Reported Outcome Measurement Information System (PROMIS®) is a National Institutes of Health (NIH)-funded initiative to develop reliable, valid, and normed item banks to measure health. We describe the first large-scale translation and cross-cultural adaptation effort to German and Spanish of eight pediatric PROMIS item banks: Physical activity (PAC), subjective well-being (SWB), experiences of stress (EOS), and family relations (FAM). We utilized methods outlined in the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) PRO Translation Task Force recommendations. Ten professional translators performed a translatability assessment and generated forward translations. Forward Translations were compared within a country and cross-culturally to identify problems and to produce a consensus-derived version, which was then back translated, evaluated, and revised where necessary. Reconciled versions were evaluated in cognitive interviews with 126 children before finalization. Eight resulting pediatric PROMIS® item banks were translated: Two PAC banks (22 total items), three SWB banks (125 total items), two EOS banks (45 total items), and one FAM bank (47 total items). Up to 92% of all items raised no ...Continue Reading

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Citations

Feb 28, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Alyssa M BamerDagmar Amtmann
Aug 17, 2021·European Journal of Psychotraumatology·Alexandra C De YoungUNKNOWN COVID-19 Unmasked Global Collaboration

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