Treatment decision making experiences of migrant cancer patients and their families in Australia

Patient Education and Counseling
Joanne ShawPhyllis Butow

Abstract

To explore treatment decision-making experiences of Australian migrants with cancer from Arabic, Chinese, or Greek backgrounds and their relatives. 73 patients and 18 caregivers from cancer support groups and oncology clinics participated in either a focus group (n=14) or semi-structured interview (n=21) conducted in the participant's own language. Participant treatment decision-making preferences were discussed as part of patients' overall treatment experience and a thematic analysis conducted. Four main themes emerged from the data: (1) perceived role of the patient in decision-making; (2) access to information and the impact of language; (3) cultural influences (4) family involvement. The majority of participants experienced passive involvement during treatment consultations, but expressed a desire for greater involvement. Language rather than culture was a greater obstacle to active participation. Difficulty communicating effectively in English was the most significant barrier to participation in treatment decisions. To overcome language challenges, participants actively sought information from alternative sources. This study provides new insights into the influence of language and culture on the treatment decision-making e...Continue Reading

References

Sep 1, 1992·Journal of Clinical Epidemiology·L F Degner, J A Sloan
May 26, 1999·Australian and New Zealand Journal of Medicine·X HuangD Goldstein
May 16, 2001·Social Science & Medicine·M GattellariM H Tattersall
Mar 16, 2002·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Nancy L KeatingJane C Weeks
Jan 26, 2005·Psycho-oncology·Jane TurnerUNKNOWN National Cancer Control Initiative, Melbourne, Australia
Feb 18, 2006·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Howard S GordonJulianne Souchek
Nov 22, 2007·Journal of General Internal Medicine·Giang T NguyenRobert C Hornik
Feb 26, 2011·Psycho-oncology·D MitchisonD Goldstein
Jan 25, 2012·Psycho-oncology·Mona SalehJudy Kirk
Aug 2, 2013·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Judy Huei-Yu WangEllen Huang
Aug 31, 2013·Oncology Nursing Forum·Rana F ObeidatRobin M Lally

❮ Previous
Next ❯

Citations

Dec 5, 2015·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Joanne M ShawJane M Young
Jun 5, 2018·Palliative & Supportive Care·Anna GreenElizabeth A Lobb
May 26, 2017·Journal of Clinical Nursing·Sok Shin YapScott A Fraser
Nov 20, 2016·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Cannas Kwok, Fung Kuen Koo
Sep 12, 2018·Journal of Immigrant and Minority Health·Ariel Yeheskel, Shail Rawal
Mar 27, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Cathy O'CallaghanBen Harris-Roxas

❮ Previous
Next ❯

Related Concepts

Related Feeds

Babesiosis

Babesiosis is caused by parasites of the genus babesia, which are transmitted in nature by the bite of an infected tick. Discover the latest research on babesiosis here.