TREatment of ATopic eczema (TREAT) Registry Taskforce: an international Delphi exercise to identify a core set of domains and domain items for national atopic eczema photo- and systemic therapy registries

The British Journal of Dermatology
Louise A A Gerbensinternational TREAT Registry Taskforce

Abstract

Evidence of immunomodulatory therapies to guide clinical management of atopic eczema (AE) is scarce, despite frequent and often off-label use. Patient registries provide valuable evidence for the effects of treatments under real-world conditions that can inform treatment guidelines, give the opportunity for health economic evaluation and the evaluation of quality of care, as well as pharmacogenetic and dynamic research, which cannot be adequately addressed in clinical trials. The TREatment of ATopic eczema (TREAT) Registry Taskforce aims to seek international consensus on a core set of domains and items ('what to measure') for AE research registries, using a Delphi approach. Participants from six stakeholder groups were included: doctors, nurses, nonclinical researchers, patients, industry and regulatory body representatives. The eDelphi comprised three sequential online rounds, requesting participants to rate the importance of each proposed domain item. Participants could add domain items to the proposed list in round 1. A final consensus meeting was held to ratify the core set. Participants (n = 479) from 36 countries accessed the eDelphi platform, of whom 86%, 79% and 74% completed rounds 1, 2 and 3, respectively. At the fac...Continue Reading

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Citations

Oct 16, 2018·The British Journal of Dermatology·I Garcia-Doval, R S Stern
Feb 6, 2019·The British Journal of Dermatology·F M VermeulenUNKNOWN International TREAT Registry Taskforce
May 31, 2019·The British Journal of Dermatology·L E M de WijsD J Hijnen
Mar 18, 2019·Journal of the American Academy of Dermatology·Cecilia A C PrinsenJochen Schmitt
May 21, 2021·The Journal of Dermatology·Angela L BosmaPhyllis I Spuls

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Software Mentioned

TREATgermany
DelphiManager
SPSS
elphi
TREAT
eDelphi
R
TurningPoint

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