Undefined and unpredictable responsibility: a focus group study of the experiences of informal caregiver spouses of patients with severe COPD

Journal of Clinical Nursing
Dorthe Gaby BoveDorthe Overgaard

Abstract

To explore how spouses of patients with severe chronic obstructive pulmonary disease experience their role as informal caregiver. Informal caregiver spouses are of pivotal importance in the way that patients with chronic obstructive pulmonary disease cope with their daily life, including their opportunity to stay at home and avoid hospitalisations in the last stages of the disease. However, caregiving is associated with increased morbidity and mortality among caregivers. Further understanding of the role as an informal caregiver spouse of patients with severe chronic obstructive pulmonary disease is needed to develop supportive interventions aimed at reducing the caregiver burden. The study had a qualitative exploratory design. The data collection and analysis were based on framework method. Framework method is a thematic methodology and consists of five key stages: familiarisation, identifying a thematic framework, indexing, charting and mapping & interpretation. Three focus groups were conducted in November 2013 with 22 spouses of patients with severe chronic obstructive pulmonary disease. Undefined and unpredictable responsibility was found to be the overarching theme describing the informal caregiver role. Underlying themes...Continue Reading

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Citations

Oct 25, 2016·Journal of Biomedical Informatics·Nicolas A RissoOscar Loyola
Dec 19, 2017·Health & Social Care in the Community·Yvette WittenbergAlice de Boer
Aug 18, 2018·Journal of Palliative Medicine·Susann StrangPeter Strang
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Jul 1, 2021·Chronic Respiratory Disease·Sandra Esperanza Rubio-RaskAnders Løkke
Jun 25, 2021·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Madhuvanthi SureshRanak Trivedi

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