Understanding Long-Term Cancer Survivors' Preferences for Ongoing Medical Care

Journal of General Internal Medicine
Tenbroeck G SmithLarissa Nekhlyudov

Abstract

Due to risk for treatment-related late effects and concerns about cancer recurrence, long-term cancer survivors have unique medical needs. Survivors' preferences for care may influence adherence and care utilization. To describe survivors' preferences for care and factors associated with preferred and actual care. Cross-sectional analysis of participants in a longitudinal study using mailed questionnaires. Survivors of ten common cancers (n = 2,107, mean years from diagnosis 8.9). (1) Survivors' preferences for primary care physician (PCP) and oncologist responsibilities across four types of care: cancer follow-up, cancer screening, preventive health, and comorbid conditions. (2) Survivor-reported visits to PCPs and oncologists. The response rate was 42.1%. Most long-term survivors preferred PCPs and oncologists share care for cancer follow-up (63%) and subsequent screening (65%), while preferring PCP-led preventive health (77%) and comorbid condition (83%) care. Most survivors (88%) preferred oncologists involved in cancer follow-up care, but only 60% reported an oncologist visit in the previous 4 years, and 96% reported a PCP visit in the previous 4 years. In multivariable regressions, those with higher fear of cancer recurre...Continue Reading

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Citations

Feb 6, 2021·Cancer Medicine·Chiranjeev DashLucile Adams-Campbell
Aug 2, 2021·Journal of the American Medical Informatics Association : JAMIA·Sean P MiklesArlene E Chung
Aug 30, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Hui-Qin LiXiu-Ying Zhang

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