Understanding the Care Needs and Profile of People Living at Home With Moderate to Advanced Stage Parkinson Disease

Journal of Geriatric Psychiatry and Neurology
Annette HandRichard W Walker

Abstract

In the United Kingdom, people with Parkinson disease (PD) and atypical parkinsonism will require more support with their care needs as the condition progresses. There are few data on the nature of care input required and the amount of informal and formal care needed by people with PD to enable them to remain within their own home. All people with moderate to advanced stage (Hoehn and Yahr III-V) idiopathic PD and atypical parkinsonism under the care of the Northumbria Healthcare NHS Foundation Trust PD service and living in their own home were invited to take part in The Northumbria Care Needs Project, a 10-year prospective longitudinal study. At baseline, data regarding formal (paid) personal and domestic care input and use of respite care, sitting services, and day centers were collected. We also collected data on patient cognitive disability, functional disability, and disease severity and informal carer tasks. Of 162 people with PD included in the study, only 25.2% accessed formal domestic care and the same proportion formal personal care. In contrast, 80.2% identified an informal carer who helped with these tasks. Despite greater level of functional disability in those with an informal carer, levels of formal personal care...Continue Reading

References

Feb 1, 1991·Journal of the American Geriatrics Society·D Podsiadlo, S Richardson
May 1, 1967·Neurology·M M Hoehn, M D Yahr
Jun 1, 1983·Acta Psychiatrica Scandinavica·A S Zigmond, R P Snaith
Sep 1, 2000·Journal of the American Geriatrics Society·D AarslandK Laake
Oct 10, 2003·Movement Disorders : Official Journal of the Movement Disorder Society·Leslie FindleyJeremy R Playfer
Jan 30, 2004·Sleep·Johan MarinusAnne Margarethe Stiggelbout
Apr 9, 2005·Journal of the American Geriatrics Society·Ziad S NasreddineHoward Chertkow
Jun 15, 2007·European Journal of Public Health·Elina K NihtiläUnto T Häkkinen
Aug 4, 2007·Movement Disorders : Official Journal of the Movement Disorder Society·Kallol Ray ChaudhuriAnthony H V Schapira
Aug 19, 2007·Parkinsonism & Related Disorders·Leslie J Findley
Feb 4, 2009·Neurological Sciences : Official Journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology·Marco D'AmelioGiovanni Savettieri
Sep 22, 2009·Movement Disorders : Official Journal of the Movement Disorder Society·Dag AarslandAnette Schrag
Jul 16, 2010·BMC Geriatrics·Gilberte Van Rensbergen, Tim Nawrot
Oct 19, 2010·Palliative Medicine·Dorry McLaughlinHelen Chambers
May 10, 2011·Disability and Rehabilitation·Brenda L Den OudstenUNKNOWN Whoqol-Dis Group
Mar 12, 2013·Archives of Physical Medicine and Rehabilitation·Joe R NoceraUNKNOWN National Parkinson Foundation Quality Improvement Initiative Investigators

❮ Previous
Next ❯

Citations

Oct 24, 2020·Journal of Geriatric Psychiatry and Neurology·Stefania KalampokiniAnette-Eleonore Schrag
Sep 15, 2019·Applied Nursing Research : ANR·Melanie A HorningBarbara Habermann
Nov 7, 2020·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Ju Young Shin, Barbara Habermann
Mar 3, 2021·Journal of Geriatric Psychiatry and Neurology·Annette HandRichard W Walker

❮ Previous
Next ❯

Software Mentioned

SPSS

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.