Unsung heroes, flying blind-A metasynthesis of parents' experiences of caring for children with special health-care needs at home

Journal of Clinical Nursing
Carina Nygård, Anne Clancy

Abstract

To aggregate, synthesise and interpret qualitative research studies of parents' experiences of caring for a child with special health-care needs at home. Advances in the field of medical and nursing science have ensured better survival rates for children with chronic illnesses. Many of these children have significant special health-care needs. Today parents assume a caregiver role, undertaking tasks previously provided by nurses in hospitals. As the complexity of care delivered by parents continues to develop, synthesised knowledge can provide an evidence base that will support and guide nurses when caring for these families. Metasynthesis. Based upon a systematic search protocol, a structured literature search, covering the years 2003-2016, was conducted in five electronic databases. Ten studies were included and appraised using the Critical Appraisal Skills Program assessment tool. A metasummary and a metasynthesis were undertaken guided by the metasynthesis methodology as described by Sandelowski and Barroso (Handbook for synthesizing qualitative research. New York, NY: Springer, 2007). The results were interpreted and integrated under the overarching theme "unsung heroes, flying blind," supported by eight elucidating catego...Continue Reading

References

Aug 26, 1998·Pediatrics·M McPhersonB Strickland
Nov 13, 2001·Journal of Advanced Nursing·H R Fisher
Jul 9, 2002·International Journal of Nursing Studies·Susan Kirk, Caroline Glendinning
Mar 1, 2003·Journal of Pediatric Nursing·S Sullivan-BolyaiM Grey
May 8, 2004·Nursing & Health Sciences·Anne Trollvik, Elisabeth Severinsson
Jul 22, 2004·International Journal of Nursing Practice·Debra Jackson, Judy Mannix
Nov 17, 2005·Journal of Family Nursing·Roberta S Rehm, Joan F Bradley
Mar 21, 2006·Journal of Pediatric Nursing·Liisamaija Nuutila, Sanna Salanterä
Sep 14, 2006·Journal of Clinical Nursing·Linda ShieldsJudith Hunter
Dec 16, 2006·Qualitative Health Research·Terese Bondas, Elisabeth O C Hall
Feb 19, 2008·Journal of Family Nursing·Lori S Lauver
Feb 22, 2008·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Franco A CarnevalePatricia McKeever
May 27, 2009·Journal of Pediatric Nursing·Anne WennickInger Hallström
Jul 22, 2009·PLoS Medicine·David MoherUNKNOWN PRISMA Group
Jan 13, 2010·Qualitative Health Research·Wendy DugglebyAllison Williams
Apr 29, 2010·Journal of Advanced Nursing·Deborah Finfgeld-Connett
Jun 28, 2011·Journal of Clinical Nursing·Yu-Ping HuangWinsome St John
Nov 15, 2011·Medicine, Health Care, and Philosophy·Charlotte Delmar
Feb 7, 2012·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Damhnat McCannTania Winzenberg
Jan 15, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Joanna SmithHilary Bekker
Jun 19, 2013·Paediatric and Perinatal Epidemiology·Lars Johan HaugeMargarete E Vollrath
Jul 12, 2013·Journal of Pediatric Psychology·Melissa K Cousino, Rebecca A Hazen
Nov 28, 2014·Journal of the American Psychiatric Nurses Association·Carmen Caicedo
Feb 26, 2015·Qualitative Health Research·Emily HaylesAnne Jones
Mar 22, 2015·Journal of Family Nursing·Liselott ÅrestedtCarina Persson
Mar 22, 2015·Qualitative Health Research·Mette S LudvigsenLisbeth Uhrenfeldt
Dec 14, 2016·Qualitative Health Research·Sally Thorne

❮ Previous
Next ❯

Citations

Dec 10, 2019·Pediatric Transplantation·Leigh Ann DiFuscoKathleen A Schell
Jul 3, 2020·Nursing Ethics·Anne ClancyAud Johannessen
Sep 9, 2020·Disability and Rehabilitation·David W RothwellRubab G Arim
May 5, 2021·Maternal and Child Health Journal·Genevieve GraafKathleen C Thomas

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.