Urological chronic pelvic pain syndrome flares and their impact: qualitative analysis in the MAPP network

International Urogynecology Journal
Siobhan SutcliffeSandra H Berry

Abstract

Although in-depth qualitative information is critical to understanding patients' symptom experiences and to developing patient-centered outcome measures, only one previous qualitative study has assessed urological chronic pelvic pain syndrome (UCPPS) symptom exacerbations ("flares"). We conducted eight focus groups of female UCPPS (interstitial cystitis/bladder pain syndrome) patients at four sites from the MAPP Research Network (n = 57, mean = 7/group) to explore the full spectrum of flares and their impact on patients' lives. Flare experiences were common and varied widely in terms of UCPPS symptoms involved, concurrent nonpelvic symptoms (e.g., diarrhea), symptom intensity (mild to severe), duration (minutes to years), and frequency (daily to < once/year), although the most commonly described flares were painful flares lasting days. These latter flares were also most disruptive to participants' lives, causing some to cancel social events, miss work or school, and in the worst cases, go to the emergency room or on disability leave. Participants also reported a longer-term impact of flares, including negative effects on their sexual functioning and marital, family, and social relationships; and the loss of employment or limite...Continue Reading

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Citations

May 25, 2016·International Journal of Urology : Official Journal of the Japanese Urological Association·Yukio HommaKyu-Sung Lee
Feb 22, 2018·Neurourology and Urodynamics·UNKNOWN Urinology Think Tank Writing Group
Dec 31, 2017·The Journal of Urology·Siobhan SutcliffeUNKNOWN MAPP Research Network
Jul 25, 2017·The Journal of Urology·Kristina Allen-BradyPeggy Norton
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Feb 2, 2020·World Journal of Urology·Süleyman YıldırımPilar Laguna
Jun 16, 2019·Archives of Gynecology and Obstetrics·Bruna Helena MelladoFrancisco José Candido Dos Reis
Apr 16, 2020·International Journal of Urology : Official Journal of the Japanese Urological Association·Yukio HommaKyu-Sung Lee
Jan 5, 2021·Frontiers in Pharmacology·Peadar RooneyLeo R Quinlan

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