Abstract
Data from population-based cancer registries (PBCR) are critical for planning, monitoring and evaluation of cancer control programs, but are frequently underutilized by key stakeholders. As part of the ongoing partnership of the International Agency for Research on Cancer (IARC) and the WHO Eastern Mediterranean Regional Office (EMRO) in cancer surveillance, we designed a cancer registry survey to assess the level of involvement of PBCR in national cancer control planning across the region. A questionnaire on registry characteristics, their contribution to cancer control and perceived barriers, was sent to 14 countries with operational PBCR. We obtained replies from Bahrain, Egypt, Iraq, Iran, Jordan, Kuwait, Lebanon, Morocco, Oman, Qatar, Saudi Arabia, Tunisia and the United Arab Emirates. We found a high participation of PBCR in cancer control planning (all registries involved, 46% routinely) and the evaluation of screening (92% registries involved, 46% routinely), but a much lower level of participation in palliative care and rehabilitation activities. Specified barriers included poor governance, a lack of awareness by policy makers, insufficient resources and a limited availability of data electronically, including mortalit...Continue Reading
References
Nov 1, 1992·Cancer Causes & Control : CCC·B K Armstrong
Jul 14, 1999·Vaccine·J S BreseeJ R Gentsch
May 9, 2008·International Journal of Clinical Oncology·Donald Maxwell Parkin
Jul 19, 2012·Bulletin of the World Health Organization·Amitava Banerjee
Aug 19, 2014·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·S SieslingJ W Coebergh
Sep 5, 2014·BMJ : British Medical Journal·David Tordrup, Roberto Bertollini
Dec 9, 2014·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Ahti AnttilaLawrence von Karsa
May 10, 2015·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Jan Willem CoeberghJanny van den Eijnden-van Raaij
Jul 3, 2015·International Journal of Cancer. Journal International Du Cancer·Robai GakungaUNKNOWN African Cancer Registry Network
Jan 9, 2017·Japanese Journal of Clinical Oncology·Kota Katanoda, Megumi Hori
Mar 8, 2017·Cancer Epidemiology·Ivana KulhánováIsabelle Soerjomataram
Mar 9, 2017·The Lancet Oncology·Ibtihal FadhilSheila Payne
Dec 6, 2017·Cancer·Mary C WhiteHannah K Weir
Dec 7, 2017·Virchows Archiv : an International Journal of Pathology·Luca BerteroPaola Cassoni
Feb 8, 2018·The Lancet Oncology·Ariana ZnaorFreddie Bray
Sep 13, 2018·CA: a Cancer Journal for Clinicians·Freddie BrayAhmedin Jemal
Sep 28, 2018·European Journal of Cancer Prevention : the Official Journal of the European Cancer Prevention Organisation (ECP)·Vivian H T SoTawfik A M Khoja
Oct 1, 2018·The Lancet Oncology·Yannick RomeroAndré M Ilbawi
Feb 5, 2019·The Lancet Oncology·Marion PiñerosJames Brierley
Mar 19, 2019·International Journal of Cancer. Journal International Du Cancer·Ivana KulhánováIsabelle Soerjomataram
May 16, 2019·International Journal of Cancer. Journal International Du Cancer·Walburga Y Joko-FruDonald M Parkin
Aug 6, 2019·Cancer·Thomas C TuckerBin Huang