Use of formal advance care planning documents: a national survey of UK Paediatric Intensive Care Units

Archives of Disease in Childhood
Sarah MitchellJeremy Dale

Abstract

Advance Care Planning (ACP) is nationally a core element of adult and paediatric palliative care strategies. It is defined as a process of discussion between an individual, their care providers and those close to them, about future care. Formal procedures and processes can help with some of the most difficult elements of communication related to ACP. The majority of children who die do so in a Paediatric Intensive Care Unit (PICU). This survey aimed to identify and compare paediatric ACP documents that are in use within UK hospitals with a PICU. Email survey of lead clinicians from UK PICUs (n=28). 24 (86%) questionnaires were returned. 14 (58%) responded that formal ACP documents were currently in use within their hospital trust. Of the remainder, 2 (8%) detailed plans to launch local ACP documents in the near future, 1 (4%) had a 'Children and Young Persons Deterioration Management (CAYPDM) Document' and 3 (12%) listed rapid discharge and extubation pathways. 6 (25%) provided details of the document in use. They varied widely in terms of their presentation, content and intended use with some having been developed locally and others having been adopted across regions. There is variation around the UK in the existence of formal...Continue Reading

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Citations

Oct 3, 2014·Archives of Disease in Childhood·Karen A Horridge
Mar 10, 2016·Archives of Disease in Childhood·Adrian Plunkett, Roger C Parslow
Mar 14, 2018·The American Journal of Hospice & Palliative Care·Jeff MyersTara Walton
Mar 5, 2019·Journal of Hospice and Palliative Nursing : JHPN : the Official Journal of the Hospice and Palliative Nurses Association·Anne WatsonMaureen E Lyon
Feb 2, 2019·Archives of Disease in Childhood·Peter SidgwickRenee McCulloch
Dec 22, 2017·Journal of Paediatrics and Child Health·Shreerupa Basu, Kevin Swil
Mar 19, 2020·Health Informatics Journal·Scott McLachlanNorman Fenton
Nov 20, 2020·Archives of Disease in Childhood·Johanna TaylorJan Aldridge
Feb 27, 2021·Scientific Reports·Julia García ManceboRafael González Cortés

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