User-Centered Design Groups to Engage Patients and Caregivers with a Personalized Health Information Technology Tool

Biology of Blood and Marrow Transplantation : Journal of the American Society for Blood and Marrow Transplantation
Molly MaherSung Won Choi

Abstract

Health information technology (IT) has opened exciting avenues for capturing, delivering and sharing data, and offers the potential to develop cost-effective, patient-focused applications. In recent years, there has been a proliferation of health IT applications such as outpatient portals. Rigorous evaluation is fundamental to ensure effectiveness and sustainability, as resistance to more widespread adoption of outpatient portals may be due to lack of user friendliness. Health IT applications that integrate with the existing electronic health record and present information in a condensed, user-friendly format could improve coordination of care and communication. Importantly, these applications should be developed systematically with appropriate methodological design and testing to ensure usefulness, adoption, and sustainability. Based on our prior work that identified numerous information needs and challenges of HCT, we developed an experimental prototype of a health IT tool, the BMT Roadmap. Our goal was to develop a tool that could be used in the real-world, daily practice of HCT patients and caregivers (users) in the inpatient setting. Herein, we examined the views, needs, and wants of users in the design and development pro...Continue Reading

References

Sep 27, 2000·Social Science & Medicine·N Mead, P Bower
Jun 10, 2004·Journal of the American Medical Informatics Association : JAMIA·Mark A EarnestChen-Tan Lin
Jul 22, 2004·Pediatric Blood & Cancer·Sean PhippsShesh N Rai
Dec 17, 2005·Journal of the American Medical Informatics Association : JAMIA·Paul C TangDaniel Z Sands
Apr 28, 2006·The New England Journal of Medicine·Edward A Copelan
May 17, 2006·Annals of Internal Medicine·Basit ChaudhryPaul G Shekelle
Sep 8, 2006·The New England Journal of Medicine·Matthew J Ellis, Uptal D Patel
Mar 20, 2008·Health Education Research·Robert P HawkinsArie Dijkstra
Dec 24, 2008·Bone Marrow Transplantation·B L FifeT E Stump
Apr 28, 2009·Patient Education and Counseling·Donald J Cegala, Douglas M Post
May 1, 2009·Journal of Medical Internet Research·Elissa R WeitzmanKenneth D Mandl
Jul 2, 2009·Journal of the American Medical Informatics Association : JAMIA·Maria T BrittoWilliam Hersh
Jul 21, 2010·Annals of Internal Medicine·Tom DelbancoValerie D Weber
Sep 16, 2010·Pediatric Blood & Cancer·Lindsay M BollingerSarah H O'Brien
Jun 15, 2011·The Journal of Cardiovascular Nursing·Janna StephensCheryl R Dennison Himmelfarb
Dec 29, 2011·Medical Care Research and Review : MCRR·Brian W PennarolaUNKNOWN HSCT-CHESS Study
Jul 31, 2012·Clinical Journal of Oncology Nursing·Liz CookeRobin Gemmill
Nov 28, 2012·Journal of Medical Internet Research·Elske AmmenwerthAlexander Hoerbst
Feb 6, 2013·Health Affairs·Lygeia RicciardiErin P Siminerio
Mar 30, 2013·Journal of the American Medical Informatics Association : JAMIA·Mustafa OzkaynakSaira N Haque
May 17, 2013·Journal of the American Medical Informatics Association : JAMIA·Courtney R LylesAndrew J Karter
Sep 24, 2013·Health Informatics Journal·Terri L ByczkowskiMaria T Britto
Nov 26, 2013·Journal of the American Medical Informatics Association : JAMIA·Jennifer E PreyDavid K Vawdrey
Jun 28, 2014·Biology of Blood and Marrow Transplantation : Journal of the American Society for Blood and Marrow Transplantation·Florian KeuschSung Won Choi
Apr 19, 2015·Biology of Blood and Marrow Transplantation : Journal of the American Society for Blood and Marrow Transplantation·C Frederick LeMaistre, Stephanie H Farnia
May 23, 2015·Journal of Medical Internet Research·Ines BaudendistelDominik Ose
Jun 25, 2015·Journal of Medical Internet Research·Taya IrizarryChristine R Curran
Jul 15, 2015·PLoS Medicine·Courtney LylesUrmimala Sarkar

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Citations

Oct 19, 2017·Journal of the American Medical Informatics Association : JAMIA·Lisa V GrossmanDavid K Vawdrey
Nov 22, 2017·Journal of Genetic Counseling·Diane M KorngiebelWylie Burke
Apr 9, 2019·Journal of the American Medical Informatics Association : JAMIA·Lisa V GrossmanJessica S Ancker
Sep 18, 2020·Journal of Medical Internet Research·Kea TurnerChristopher M Shea
Jun 8, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Carmit McMullenScott Gilbert
Sep 21, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Alex J FauerSung Won Choi
Sep 21, 2018·American Society of Clinical Oncology Educational Book·Ji Youn ShinSung Won Choi
Jul 28, 2020·Journal of Adolescent and Young Adult Oncology·Kristina Brookshire-GayFlora Hoodin
Mar 23, 2021·Journal of the American Medical Informatics Association : JAMIA·Teresa Zayas-CabánP Jon White
Jul 14, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Lauren R BangerterKristin Fischer

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