Users' Experiences of a Mobile Health Self-Management Approach for the Treatment of Cystic Fibrosis: Mixed Methods Study.

JMIR MHealth and UHealth
Jacqueline FlochJosé Luis Bayo Montón

Abstract

Despite a large number of clinical trials aiming at evaluating the digital self-management of chronic diseases, there is little discussion about users' experiences with digital approaches. However, a good user experience is a critical factor for technology adoption. Understanding users' experiences can inform the design of approaches toward increased motivation for digital self-management. This study aimed to evaluate the self-management of cystic fibrosis (CF) with a focus on gastrointestinal concerns and the care of young patients. Following a user-centered design approach, we developed a self-management app for patients and parents and a web tool for health care professionals (HCPs). To evaluate the proposed solutions, a 6-month clinical trial was conducted in 6 European CF competence centers. This paper analyzes the user acceptance of the technology and the benefits and disadvantages perceived by the trial participants. A mixed methods approach was applied. Data were collected through 41 semistructured qualitative interviews of patients, parents, and HCPs involved in the clinical trial. In addition, data were collected through questionnaires embedded in the self-management app. Support for enzyme dose calculation and nutrit...Continue Reading

References

Nov 7, 2006·Patient Education and Counseling·Isabelle AujoulatAlain Deccache
May 9, 2012·Journal of Medical Internet Research·Joseph A CafazzoMark R Palmert
Jul 3, 2013·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Drucy BorowitzBonnie Ramsey
May 27, 2014·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Steven ConwayDaniel Peckham
Dec 15, 2015·Journal of the American Medical Informatics Association : JAMIA·Kevin B JohnsonShelagh A Mulvaney
Apr 14, 2016·Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition·Dominique TurckMichael Wilschanski
Apr 25, 2016·The Journal of Allergy and Clinical Immunology. in Practice·Kevin A CookRonald A Simon
Mar 23, 2017·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Joaquim Calvo-LermaUNKNOWN MyCyFAPP Project
Jan 19, 2018·JMIR MHealth and UHealth·Milena Soriano MarcolinoDavid Novillo-Ortiz
May 4, 2018·JMIR MHealth and UHealth·Lise SwitsersJfe Oldenburg
Mar 14, 2019·Journal of the Academy of Nutrition and Dietetics·Joaquim Calvo-LermaCarmen Ribes-Koninckx
Jul 12, 2019·JMIR MHealth and UHealth·VanAnh VoAline Sarradon-Eck

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