Using Delphi methodology in the development of a new patient-reported outcome measure for stroke survivors with visual impairment

Brain and Behavior
Lauren R Hepworth, Fiona J Rowe

Abstract

The aim of this study was to ascertain what items stroke survivors and stroke care professionals think are important when assessing quality of life for stroke survivors with visual impairment for inclusion in the new patient-reported outcome measure. A reactive Delphi process was used in a three-round electronic-based survey. The items presented consisted of 62 items originally sourced from a systematic review of existing vision-related quality of life instruments and stroke survivor interviews, reduced and refined following a ranking exercise and pilot with stroke survivors with visual impairment. Stakeholders (stroke survivors/clinicians) were invited to take part in the process. A consensus definition of ≥70% was decided a priori. Participants were asked to rank importance on a 9-point scale and categorize the items by relevance to types of visual impairment following stroke or not relevant. Analysis of consensus, stability, and agreement was conducted. In total, 113 participants registered for the Delphi survey of which 47 (41.6%) completed all three rounds. Response rates to the three rounds were 78/113 (69.0%), 61/76 (81.3%), and 49/64 (76.6%), respectively. The participants included orthoptists (45.4%), occupational ther...Continue Reading

References

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Sep 17, 2015·Health and Quality of Life Outcomes·Lauren R HepworthHelen Rodgers

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Citations

Dec 20, 2018·Journal of Neuromuscular Diseases·Claudia R SenesacBarbara K Smith
Nov 10, 2020·Archives of Physical Medicine and Rehabilitation·Amy Freeman-SandersonUNKNOWN COVID-19 SLP Global Group

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