Using existing data to identify candidate items for a health state classification system in multiple sclerosis

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
Ayse KuspinarNancy E Mayo

Abstract

In multiple sclerosis (MS), the use of preference-based measures is limited to generic measures such as Health Utilities Index Mark 2 and 3, the EQ-5D and the SF-6D. However, the challenge of using such generic preference-based measures in people with MS is that they may not capture all domains of health relevant to the disease. Therefore, the main aim of this paper is to describe the development of a health state classification system for MS patients. The specific objectives are: (1) to identify items best reflecting the domains of quality of life important to people with MS and (2) to provide evidence for the discriminative capacity of the response options by cross-walking onto a visual analog scale of health rating. The data come from an epidemiologically sampled population of people with MS diagnosed post-1994. The dataset consisted of 206 items relating to impairments, activity limitations, participation restrictions, health perception and quality of life. Important domains were identified from the responses to the Patient Generated Index, an individualized measure of quality of life. The extent to which the items formed a uni-dimensional, linear construct was estimated using Rasch analysis, and the best item was selected ...Continue Reading

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Citations

Jan 29, 2016·Applied Health Economics and Health Policy·Elizabeth Goodwin, Colin Green
Dec 3, 2016·Movement Disorders : Official Journal of the Movement Disorder Society·Pablo Martinez-Martin
Aug 3, 2018·Multiple Sclerosis : Clinical and Laboratory Research·Ayse Kuspinar, Nancy E Mayo
Dec 18, 2015·PloS One·Julie C Ruel-BergeronKlaus Kraemer
May 16, 2019·Expert Opinion on Pharmacotherapy·Emanuele D'AmicoFrancesco Patti
Jun 20, 2020·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Maryam MozafariniaNancy E Mayo
Dec 19, 2016·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Nancy E MayoSusan Scott
May 1, 2021·International Journal of Environmental Research and Public Health·Moustapha TouréThomas G Poder

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