Using patient and public involvement to identify priorities for research in long-term conditions management.

British Journal of Nursing : BJN
Sarah BrandAlison Musgrove

Abstract

Patient and public involvement (PPI) is increasingly important in healthcare research. Although this is accepted at the level of individual research studies, it has been less well used in scoping fundamental research priorities. It has been suggested that patients with long-term conditions (LTCs) are well placed to influence research priorities in this area due to their accumulated experience of illness over time. To obtain PPI in research-priority setting for a group with a special interest in LTC research. PPI representatives provided views on issues they thought required further research. The facilitators were able to move from the specifics of these ideas to identify cross-cutting research priorities. It was possible to determine broad research themes despite PPI representatives initially articulating identified issues in very specific terms. Facilitating a better understanding of the research process for PPI representatives would allow their contribution to be more effective. Implications for practice PPI should be considered at the beginning of the process when broad research priorities are considered and before the study design. This is particularly so for broad, non-specialty-focused research themes such as LTCs. More w...Continue Reading

References

Feb 19, 2009·BMJ : British Medical Journal·Trisha Greenhalgh
Jul 20, 2012·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jo BrettRashida Suleman
Feb 27, 2014·BMC Health Services Research·Juan Pablo DomecqMohammad Hassan Murad
May 13, 2014·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Elena PizzoJames Barlow
Mar 20, 2016·BMJ Quality & Safety·Josephine Ocloo, Rachel Matthews
Nov 26, 2016·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Louise LocockSophie Staniszewska
Apr 27, 2016·Research Involvement and Engagement·Heather J BagleyPaula R Williamson

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