Using poetry as data to explore daily and formal care decision making within African American dementia dyads.

Geriatric Nursing
Kalisha Bonds JohnsonMartha Driessnack

Abstract

There is limited research exploring how daily and formal care decision making occurs within African American dementia dyads as well as how these dyads navigate decision making across the dementia trajectory. Through semi-structured interviews, five African American dementia dyads shared their decision-making processes. We used a multimethod approach to the analysis of data, including qualitative and quantitative content analysis and the creation of I Poems. This novel use of I Poems provided a uniquely personal account of the lived experiences of the African American persons living with dementia, while other analyses revealed that within dyads, daily care decision making was led by African American persons living with dementia, whereas formal care decision making varied between dyads. There was intra-dyad congruence regarding who the final decision maker was in daily and formal care. Clinicians and researchers may be able to tailor interventions based on the dyad's involvement in these decision-making processes.

References

Jun 1, 1982·The British Journal of Psychiatry : the Journal of Mental Science·C P HughesR L Martin
Aug 15, 2000·Research in Nursing & Health·M Sandelowski
Mar 27, 2002·The Gerontologist·Sharon Wallace Williams, Peggye Dilworth-Anderson
Jun 27, 2002·Journal of Geriatric Psychiatry and Neurology·Jason H T KarlawishChristopher M Clark
Sep 10, 2002·Journal of Nutrition Education and Behavior·Nancy L KondrackiDaniel R Amundson
Sep 28, 2002·Alzheimer Disease and Associated Disorders·Peggye Dilworth-Anderson, Brent E Gibson
May 26, 2004·Journal of Geriatric Psychiatry and Neurology·Karen B HirschmanJason H T Karlawish
Oct 21, 2004·Alzheimer Disease and Associated Disorders·Ladson HintonJeffrey Friend
Apr 9, 2005·Journal of the American Geriatrics Society·Ziad S NasreddineHoward Chertkow
Oct 6, 2005·Qualitative Health Research·Hsiu-Fang Hsieh, Sarah E Shannon
Jul 17, 2007·Western Journal of Nursing Research·Helen W Lach, Yu-Ping Chang
Jan 15, 2008·The Gerontologist·Heather L Menne, Carol J Whitlatch
Feb 16, 2008·American Journal of Alzheimer's Disease and Other Dementias·Heather L MenneLynn Friss Feinberg
Sep 27, 2008·The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences·Ilene H ZuckermanBruce Stuart
Jul 18, 2009·BMC Medical Research Methodology·Mette Asbjoern NeergaardJens Sondergaard
Dec 17, 2009·Research in Nursing & Health·Margarete Sandelowski
Jul 29, 2010·Qualitative Health Research·Zvi Eisikovits, Chaya Koren
Mar 15, 2011·Alzheimer Disease and Associated Disorders·Alexander L ChinRoy Hamilton
Mar 31, 2012·The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics·Peggye Dilworth-AndersonTandrea S Hilliard
Dec 15, 2012·International Psychogeriatrics·Philip Sayegh, Bob G Knight
Mar 5, 2013·Current Opinion in Psychiatry·Naaheed MukadamGill Livingston
Mar 13, 2014·Journal of Geriatric Psychiatry and Neurology·Felicia C GoldsteinVeronique King
Jun 12, 2016·American Journal of Alzheimer's Disease and Other Dementias·Heehyul MoonCarol J Whitlatch
Mar 14, 2017·Research on Aging·Emma C PotterRosemary Blieszner
May 31, 2018·Journal of Gerontological Nursing·Kalisha Bonds, Karen S Lyons
Mar 12, 2020·Alzheimer's & Dementia : the Journal of the Alzheimer's Association

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.