Validating the Changes to Self-identity After Total Laryngectomy

Cancer Nursing
Jane BickfordDeborah Hersh

Abstract

A total laryngectomy often prolongs life but results in long-term disablement, disfigurement, and complex care needs. Current clinical practice addresses the surgical options, procedures, and immediate recovery. Less support is available longer-term despite significant changes to aspects of personhood and ongoing medical needs. The aim of this study was to explore the experience of living with and/or supporting individuals with a laryngectomy at least 1 year after surgery. Constructivist grounded theory methods and symbolic interactionism were used to guide collection and analysis of interview data from 28 participants (12 individuals with a laryngectomy, 9 primary supporters, and 7 health professionals). The phenomena of "validating the altered self after total laryngectomy" highlighted how individuals, postlaryngectomy, navigate and negotiate interactions due to the disruption of their self-expression, related competencies, and roles. Several reframing patterns representing validation of the self emerged from the narratives. They were as follows: destabilized, resigned, resolute, and transformed. The data describe the influence of the processes of developing competence and building resilience, combined with contextual factors...Continue Reading

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Citations

Jun 13, 2020·The Annals of Otology, Rhinology, and Laryngology·Klaske E van SluisMartijn M Stuiver
Oct 1, 2021·JAMA Otolaryngology-- Head & Neck Surgery·Blaine D SmithNosayaba Osazuwa-Peters

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