Validation study of the Victorian Birth Defects Register

Journal of Paediatrics and Child Health
M RileyJ Halliday

Abstract

To determine whether there has been an improvement in ascertainment of birth defects cases ('case validity') by the Victorian Birth Defects Register (BDR) since an earlier study (conducted in 1993), to ascertain the accuracy of registered data ('item validity') and to investigate another possible source of notification. The medical records were reviewed of 500 children born after 1 January 1993 who were consecutively admitted after 1 January 1999 to two paediatric teaching hospitals in Victoria. In addition, records of 200 children referred to a clinical genetics service were reviewed for children born after 1 January 1993 and who were seen in two periods: 2 months after 1 January 2001 and 2 months after 1 January 2002. The records from the hospitals and clinical genetics service were reviewed separately to determine whether children recorded as having a birth defect had previously been notified to the BDR. Twenty percent of the hospital records related to a child with a birth defect, as did 70% of the clinical genetics service records. Overall case validity for birth defect cases from the hospitals was 88%. There was 100% ascertainment for three of five categories. Sixty per cent of birth defects cases from the clinical geneti...Continue Reading

References

Sep 1, 1986·Public Health·D H Stone
Aug 1, 1995·Journal of Paediatrics and Child Health·M KilkennyJ Lumley
Sep 1, 1993·Teratology·E HemminkiJ Teperi
Aug 31, 2002·Journal of Tropical Pediatrics·Mohamed Mohamed Mokhtar, Moataz Abdel-Fattah
Jan 28, 2003·Journal of Public Health Medicine·Jeremy Hawker, UNKNOWN PHLS Communicable Disease Surveillance Centre

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Citations

Oct 19, 2006·Journal of Paediatrics and Child Health·Colleen ChewDaniel James Penny
Nov 26, 2009·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Tiong Yang TanSusan M White
May 29, 2010·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·UNKNOWN IPDTOC Working Group
Dec 12, 2013·European Journal of Pediatrics·Neelam GuptaNeil Patel
Jan 6, 2012·Journal of Plastic, Reconstructive & Aesthetic Surgery : JPRAS·A M RozendaalC Vermeij-Keers
Feb 15, 2005·Australian and New Zealand Journal of Public Health·Evelyne E Muggli, Jane L Halliday
Nov 23, 2006·The Australian & New Zealand Journal of Obstetrics & Gynaecology·Evelyne Elvira MuggliJane Lavinia Halliday
Jun 21, 2008·Birth Defects Research. Part A, Clinical and Molecular Teratology·Emanuele LeonciniPierpaolo Mastroiacovo
Mar 1, 2006·Australian and New Zealand Journal of Public Health·Lyndsey F WatsonMary-Ann Davey
Mar 6, 2007·Australian and New Zealand Journal of Public Health·Kelly AllenJane Halliday
May 16, 2007·BJOG : an International Journal of Obstetrics and Gynaecology·A M JaquesL J Sheffield
Jul 24, 2010·Australian and New Zealand Journal of Public Health·Samanthi AbeywardanaElizabeth A Sullivan
Feb 9, 2012·American Journal of Medical Genetics. Part a·Anne GlynnJane Halliday
Nov 19, 2009·American Journal of Medical Genetics. Part a·Elizabeth De SouzaJoan K Morris
Dec 7, 2013·Birth Defects Research. Part A, Clinical and Molecular Teratology·Amy MetcalfeFrancois P Bernier
Dec 3, 2014·Central European Journal of Public Health· Irisa ZilieMika Gissler
Mar 7, 2009·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Anne GlynnJane Halliday
Nov 18, 2008·The Medical Journal of Australia·Louise du PlessisJane L Halliday

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Birth Defects

Birth defects encompass structural and functional alterations that occur during embryonic or fetal development and are present since birth. The cause may be genetic, environmental or unknown and can result in physical and/or mental impairment. Here is the latest research on birth defects.