Validity of the Neurology Quality-of-Life (Neuro-QoL) measurement system in adult epilepsy

Epilepsy & Behavior : E&B
David E VictorsonDavid Cella

Abstract

Epilepsy is a chronic neurological disorder that results in recurring seizures and can have a significant adverse effect on health-related quality of life (HRQL). The Neuro-QoL measurement initiative is an NINDS-funded system of patient-reported outcome measures for neurology clinical research, which was designed to provide a precise and standardized way to measure HRQL in epilepsy and other neurological disorders. Using mixed-method and item response theory-based approaches, we developed generic item banks and targeted scales for adults and children with major neurological disorders. This paper provides empirical results from a clinical validation study with a sample of adults diagnosed with epilepsy. One hundred twenty-one people diagnosed with epilepsy participated, the majority of which were male (62%) and Caucasian (95%), with a mean age of 47.3 (SD=16.9). Baseline assessments included Neuro-QoL short forms and general and external validity measures. The Neuro-QoL short forms that are not typically found in other epilepsy-specific HRQL instruments include Stigma, Sleep Disturbance, Emotional and Behavioral Dyscontrol, and Positive Affect and Well-Being. Neurology Quality-of-Life short forms demonstrated adequate reliabilit...Continue Reading

References

Apr 1, 1991·Epilepsy Research·G A BakerD W Chadwick
Oct 1, 1984·Perceptual and Motor Skills·L J Lewandowski
Nov 1, 1995·Epilepsia·O DevinskyR D Hays
Sep 1, 1993·Seizure : the Journal of the British Epilepsy Association·J Murray
Jun 4, 1998·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·S RappR Hoffman
Mar 8, 1998·PharmacoEconomics·J A JohnsonG Szava-Kovats
Feb 11, 2000·Seizure : the Journal of the British Epilepsy Association·N EllisP Thompson
Jun 1, 2000·The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques·S Wiebe, P A Derry
Aug 6, 2000·Stroke; a Journal of Cerebral Circulation·D BuckG Ford
Apr 4, 2001·PharmacoEconomics·B A GolombR D Hays
Apr 18, 2001·Cerebrovascular Diseases·R BarbaT Del Ser
Jan 18, 2002·Journal of Neurology, Neurosurgery, and Psychiatry·J MarinusA M Stiggelbout
May 8, 2002·Journal of Neurology·Nadine H J EngelbertsDorotheé G A Kasteleijn-Nolst Trenité
Oct 24, 2002·Journal of Clinical Epidemiology·Gordon H GuyattLauren E Griffith
Sep 1, 2006·Current Treatment Options in Neurology·John M Stern
Feb 8, 2007·Epilepsia·Rosemary June PanelliTerence J O'Brien
Dec 26, 2007·Epilepsy & Behavior : E&B·Ann Jacoby, Gus A Baker
Jan 12, 2008·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Lori PerezDavid Cella
Jul 2, 2008·Current Neurology and Neuroscience Reports·Ann Jacoby
Jul 3, 2009·Epilepsy & Behavior : E&B·Cristina ParfeneTricia Z King
Jul 21, 2009·Epilepsy Research·Jane McCaghGus A Baker
Sep 29, 2009·Epilepsy & Behavior : E&B·Gigi SmithAnbesaw W Selassie
Oct 27, 2009·Neurologic Clinics·Ann JacobyGus A Baker
Jul 16, 2010·Current Neurology and Neuroscience Reports·Deborah M Miller, Rebecca Allen
May 10, 2011·Therapy·Cindy J NowinskiDavid Cella
Aug 30, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Richard C GershonDavid Cella
Oct 14, 2011·Archives of Physical Medicine and Rehabilitation·David CellaClaudia Moy

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Citations

Apr 12, 2015·Epilepsy & Behavior : E&B·Jin-Shei LaiDavid Cella
Nov 2, 2015·Epilepsy & Behavior : E&B·Neide Barreira AlonsoRicardo Silva Centeno
Feb 27, 2016·Movement Disorders : Official Journal of the Movement Disorder Society·Cindy J NowinskiDavid Cella
Jul 28, 2016·Epilepsy & Behavior : E&B·Lidia M V R MouraDaniel B Hoch
Nov 15, 2019·Movement Disorders : Official Journal of the Movement Disorder Society·Noelle E CarlozziPraveen Dayalu
Sep 16, 2019·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Cindy HuntAndrew Baker
Apr 23, 2020·Child Neuropsychology : a Journal on Normal and Abnormal Development in Childhood and Adolescence·Kaitlin A OswaldCynthia W Karlson
Dec 20, 2019·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Noelle E CarlozziJin-Shei Lai
Aug 20, 2020·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Noelle E CarlozziJane S Paulsen
Dec 11, 2019·Multiple Sclerosis Journal - Experimental, Translational and Clinical·Luis D MedinaKavita V Nair
Aug 28, 2020·Archives of Clinical Neuropsychology : the Official Journal of the National Academy of Neuropsychologists·Grant L IversonDouglas P Terry
May 10, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Alex W K WongAllen W Heinemann
Mar 25, 2019·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Henning AndersenUNKNOWN REGAIN Study Group
Dec 15, 2020·Pediatric Neurology·Alison J SeboldAnne M Comi
Jun 11, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Alberto J Pérez-PaneroManuel Gónzalez-Sánchez

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