Valuing All Voices: refining a trauma-informed, intersectional and critical reflexive framework for patient engagement in health research using a qualitative descriptive approach

Research Involvement and Engagement
P RocheKathryn M Sibley

Abstract

Critical stakeholder-identified gaps in current health research engagement strategies include the exclusion of voices traditionally less heard and a lack of consideration for the role of trauma in lived experience. Previous work has advocated for a trauma-informed, intersectional, and critical reflexive approach to patient and public involvement in health research. The Valuing All Voices Framework embodies these theoretical concepts through four key components: trust, self-awareness, empathy, and relationship building. The goal of this framework is to provide the context for research teams to conduct patient engagement through the use of a social justice and health equity lens, to improve safety and inclusivity in health research. The aim of this study was to revise the proposed Valuing All Voices Framework with members of groups whose voices are traditionally less heard in health research. A qualitative descriptive approach was used to conduct a thematic analysis of participant input on the proposed framework. Methods were co-developed with a patient co-researcher and community organizations. Group and individual interviews were held with 18 participants identifying as Inuit; refugee, immigrant, and/or newcomer; and/or as a pe...Continue Reading

References

Aug 15, 2000·Research in Nursing & Health·M Sandelowski
Oct 6, 2005·Qualitative Health Research·Hsiu-Fang Hsieh, Sarah E Shannon
Jun 16, 2009·Lancet·Iain Chalmers, Paul Glasziou
Jun 19, 2012·Journal of Comparative Effectiveness Research·Patricia A DeverkaSean R Tunis
Jul 21, 2012·Journal of Health Services Research & Policy·Ruth Stewart, Kristin Liabo
Feb 1, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Maarten P T de WitTineke A Abma
Mar 19, 2013·Journal of Clinical Epidemiology·Jeanne-Marie GuiseElaine Graham
Jun 5, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Nathan D ShippeeM Hassan Murad
Dec 12, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Felix GradingerJennie Popay
Nov 2, 2014·Qualitative Health Research·Lorenda BeloneNina Wallerstein
Apr 1, 2015·Journal of Comparative Effectiveness Research·Laura EsmailAlison Rein
Mar 20, 2016·BMJ Quality & Safety·Josephine Ocloo, Rachel Matthews
Sep 21, 2017·Healthcare Management Forum·Stephanie KnaakAndrew Szeto
Oct 7, 2017·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Clayon B HamiltonLinda C Li
Oct 25, 2017·Research Involvement and Engagement·Lidewij Eva VatHolly Etchegary
Feb 9, 2018·Health Research Policy and Systems·Elizabeth ManafoVirginia Vandall-Walker
Aug 1, 2018·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Antoine BoivinJulia Abelson
Apr 19, 2019·Journal of Health Services Research & Policy·Alex PollockRichard Morley
Apr 24, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Trisha GreenhalghAlan Chant

❮ Previous
Next ❯

Methods Mentioned

BETA
cognitive behavioural therapy

Software Mentioned

Metis Metis

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
Tamara L McCarronNancy J Marlett
The Pennsylvania Nurse
D Diers
Nursing Standard
Linda Thomas
Nursing Standard
Beverly Malone
© 2021 Meta ULC. All rights reserved