Variability in the preoperative management of infants with hypoplastic left heart syndrome

Pediatric Cardiology
B A JohnsonNancy S Ghanayem

Abstract

Infants with hypoplastic left heart syndrome (HLHS) commonly undergo initial surgical palliation during the first week of life. Few data exist on optimal preoperative management strategies; therefore, the management of these infants prior to surgery is anecdotal and variable. To more fully define this variability in preoperative care of infants with HLHS, a survey was designed to describe current preoperative management practices in the infant with HLHS. The questionnaire explored management styles as well as preoperative monitoring techniques and characteristics of the respondent's health care institution. The responses were compiled and are reported. A striking lack of consistency in preoperative management techniques for infants with HLHS is apparent. The impact of these preoperative strategies is unknown. Despite challenges in anatomic and hemodynamic variability at presentation, a prospective randomized controlled trial comparing ventilatory management techniques, enteral feeding strategies, and the utility of various monitoring tools on short- and long-term outcome is needed.

Associated Clinical Trials

References

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Citations

Oct 3, 2012·Cardiology in the Young·Glen J IannucciWilliam T Mahle
Jul 27, 2010·Congenital Heart Disease·Kevin G FriedmanJames E Lock
Aug 16, 2012·Congenital Heart Disease·Julie SlickerUNKNOWN Feeding Work Group of the National Pediatric Cardiology Quality Improvement Collaborative
Nov 5, 2011·Congenital Heart Disease·Evonne KrushanskyRicardo Munoz
Nov 2, 2014·Congenital Heart Disease·Jeffrey B AndersonUNKNOWN National Pediatric Cardiology Quality Improvement Collaborative
Jan 4, 2012·Journal of the American College of Cardiology·Jeffrey A FeinsteinGerard R Martin
Feb 18, 2012·The Journal of Pediatrics·Jeffrey B AndersonUNKNOWN National Pediatric Cardiology Quality Improvement Collaborative
Jul 14, 2016·Congenital Heart Disease·Julie SlickerUNKNOWN National Pediatric Cardiology-Quality Improvement Collaborative Feeding Work Group
Oct 9, 2014·Academic Medicine : Journal of the Association of American Medical Colleges·Michael FariasRahul H Rathod
Oct 1, 2011·World Journal for Pediatric & Congenital Heart Surgery·Srikant B IyerCarole Lannon
Apr 1, 2010·World Journal for Pediatric & Congenital Heart Surgery·Kenneth G ShannDonald S Likosky
Jun 11, 2015·Circulation. Cardiovascular Quality and Outcomes·Jeffrey B AndersonUNKNOWN National Pediatric Cardiology Quality Improvement Collaborative
May 11, 2012·Current Opinion in Pediatrics·Joshua S Wolovits, Andrea Torzone
Oct 27, 2015·Plastic and Reconstructive Surgery. Global Open·Stephanie A CatersonJeffery O Greenberg
Jul 25, 2015·Current Opinion in Pediatrics·Sarah B ClaussGerard R Martin
Aug 3, 2020·The International Journal of Cardiovascular Imaging·Koyelle PapnejaLars Grosse-Wortmann
Mar 15, 2020·Archives of Disease in Childhood. Fetal and Neonatal Edition·Kajsa NordenströmAnders Elfvin
Aug 23, 2020·The Journal of Pediatrics·Patrick O'Neal MaynordStacy A S Killen

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