"We're checking them out": Indigenous and non-Indigenous research participants' accounts of deciding to be involved in research

International Journal for Equity in Health
Marilys GuilleminDoreen Rosenthal

Abstract

It is important for researchers to understand the motivations and decision-making processes of participants who take part in their research. This enables robust informed consent and promotes research that meets the needs and expectations of the community. It is particularly vital when working with Indigenous communities, where there is a history of exploitative research practices. In this paper, we examine the accounts of Australian Indigenous and non-Indigenous research participants in terms of how and why they agree to take part in research. A qualitative research approach was employed to undertake individual interviews with 36 research participants in Victoria, Australia. Eight participants identified as Indigenous and 28 were non-Indigenous. Thematic analysis was used to interpret the data. There were stark differences between Indigenous and non-Indigenous research participants in terms of why and how they decided to participate in research. For Indigenous participants, taking part in research was primarily to benefit their communities rather than for personal interests. Indigenous participants often started from a position of caution, and showed a considered and deliberate process of decision making. In weighing up their d...Continue Reading

References

Oct 1, 1983·Annals of Internal Medicine·C W LidzM R Munetz
Jun 1, 1995·British Journal of Cancer·M SlevinN Thatcher
Aug 10, 2001·Australian and New Zealand Journal of Public Health·K Humphery
Sep 1, 2001·Australian and New Zealand Journal of Public Health·F Houghton
Apr 9, 2002·Journal of Clinical Pharmacology·Carl L Tishler, Suzanne Bartholomae
Sep 26, 2002·European Journal of Cancer Care·J L DonovanN Mills
Sep 1, 2005·Journal of Medical Ethics·C L FryJ Johnston
Sep 20, 2006·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Manish AgrawalEzekiel J Emanuel
Nov 3, 2006·Qualitative Health Research·Elizabeth PeelJulia Lawton
Aug 11, 2007·The International Journal on Drug Policy·Monica J BarrattCraig L Fry
Jun 25, 2008·Archives of Internal Medicine·David WendlerUNKNOWN ESPRIT Group
Sep 1, 2006·Journal of Empirical Research on Human Research Ethics : JERHRE·Deborah C Poff
Apr 28, 2009·Social Science & Medicine·Mary Dixon-Woods, Carolyn Tarrant
Jul 7, 2009·Lancet·Michael Gracey, Malcolm King
Oct 1, 2010·The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics·Bette JacobsCharles H Evans
Jan 1, 2010·Omega·Kari DyregrovAntoon A Leenaars
Jun 18, 2011·Journal of Empirical Research on Human Research Ethics : JERHRE·Marsha MichieGiselle Corbie-Smith
Aug 10, 2012·International Journal for Equity in Health·Jenny KellyShayne Ahboo
Oct 19, 2013·American Journal of Public Health·Christina M PachecoChristine M Daley
Oct 21, 2015·Journal of Empirical Research on Human Research Ethics : JERHRE·Marilys GuilleminLynn Gillam

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Citations

Sep 18, 2016·Journal of Empirical Research on Human Research Ethics : JERHRE·Marilys GuilleminDoreen Rosenthal
May 10, 2017·Journal of Health Organization and Management·Maree HenwoodMadeleine Kendrick
Mar 22, 2018·Journal of Empirical Research on Human Research Ethics : JERHRE·Marilys GuilleminLynn Gillam
Aug 26, 2020·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Vanessa Y HiratsukaHina Walajahi
Mar 6, 2019·Health Research Policy and Systems·Christopher R LongPearl A McElfish
Oct 9, 2020·Injury Prevention : Journal of the International Society for Child and Adolescent Injury Prevention·Rebecca IversUNKNOWN Ironbark Study Collaborators
Oct 19, 2020·BMC Medical Ethics·Esteban Ortiz-PradoLila Adana-Diaz

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