PMID: 11921148Mar 29, 2002Paper

What are patients and their families told about the diagnosis of dementia? Results of a family survey

International Journal of Geriatric Psychiatry
Suzanne HolroydAndrew M Wolf

Abstract

Controversy exists as to whether dementia patients should be told their diagnosis and prognosis. This study examined the experience of patients and families when a diagnosis of dementia is given. Fifty-seven family members from community dementia support groups answered a questionnaire regarding the diagnosis of dementia in a family member. Family members were significantly more likely to have been told the diagnosis and symptoms to expect in dementia than patients themselves. Half of the families felt they were not given enough information regarding dementia. Interestingly, the majority of family members believed patients should be told their diagnosis and prognosis yet about half had reported that informed patients had reacted poorly to being told their diagnosis and only about a third felt it was helpful to the patient. The results suggest physicians should better involve patients and their families in disclosing diagnoses and information regarding dementia. The results also suggest the current AMA guidelines to inform patients their diagnosis of dementia are inadequate to address the clinical complexities of this issue.

References

Apr 2, 1992·The New England Journal of Medicine·M A Drickamer, M S Lachs
Jun 1, 1980·Annals of Internal Medicine·S J Reiser
Apr 1, 1996·Journal of the American Geriatrics Society·S HolroydZ L Chalifoux
Aug 31, 1996·BMJ : British Medical Journal·C P MaguireD O'Neill
Jun 1, 1994·International Journal of Geriatric Psychiatry·Karl Rice, Nick Warner

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Citations

Mar 3, 2007·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Alex J Mitchell
Jul 19, 2005·Aging & Mental Health·Alisoun J MilneEleni Hatzidimitriadou
Jul 19, 2005·Aging & Mental Health·Bob Woods, Rebekah Pratt
Jun 5, 2007·Alzheimer Disease and Associated Disorders·Anna M ByszewskiRaewyn Bassett
Aug 13, 2008·Alzheimer Disease and Associated Disorders·Meriem Essabiri TarekChristian Van Nechel
Nov 1, 2011·Alzheimer Disease and Associated Disorders·Alexandra K ZaletaJohn C Morris
Aug 8, 2012·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Jill PhillipsJohn E Marley
May 20, 2015·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·UNKNOWN Alzheimer’s Association
May 7, 2013·The Medical Clinics of North America·Pascal Antoine, Florence Pasquier
May 3, 2011·Revista española de geriatría y gerontología·María José RoblesUNKNOWN Grupo de Trabajo de Demencia de la Sociedad Catalana de Geriatría y Gerontología
Jan 19, 2010·Research in Gerontological Nursing·Linda GarandMary Amanda Dew
Dec 11, 2007·Patient Education and Counseling·Hanna KaduszkiewiczHendrik van den Bussche
Oct 1, 2007·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·John D FiskFrank J Molnar
Sep 2, 2003·International Journal of Geriatric Psychiatry·Paul L J DautzenbergHeleen A Paling
Sep 2, 2003·International Journal of Geriatric Psychiatry·Malaz BoustaniRichard Druckenbrod
Jun 28, 2006·International Journal of Geriatric Psychiatry·Perla Werner
Jun 20, 2006·International Journal of Geriatric Psychiatry·Malaz BoustaniHugh C Hendrie
Jan 9, 2008·Journal of the American Geriatrics Society·Kellie H CampbellGreg A Sachs
Jan 31, 2008·International Journal of Geriatric Psychiatry·Malaz BoustaniHugh C Hendrie
Jan 16, 2008·Journal of the American Geriatrics Society·Brian D CarpenterJohn C Morris
Mar 22, 2014·Geriatrics & Gerontology International·Yohko Maki, Haruyasu Yamaguchi
Dec 18, 2014·Psychogeriatrics : the Official Journal of the Japanese Psychogeriatric Society·Laura StokesGraham Stokes
Oct 27, 2012·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Perla WernerShmuel Eidelman
Mar 13, 2016·Australasian Journal on Ageing·Maree MastwykDavid Ames
Jan 2, 2014·Dementia·Rachel EdwardsSteve Iliffe
Oct 25, 2008·Arquivos de neuro-psiquiatria·Marta Maria ShimizuRicardo Nitrini
Jan 29, 2011·American Journal of Alzheimer's Disease and Other Dementias·Andrea BradfordMark E Kunik
Aug 26, 2014·Qualitative Health Research·Galia S MoranOrit Karnieli-Miller
Apr 25, 2014·Journal of Geriatric Psychiatry and Neurology·Eric MormontDenis Jacques
Sep 3, 2005·American Journal of Alzheimer's Disease and Other Dementias·Inge Cantegreil-KallenAntoine Flahault
Sep 5, 2006·American Journal of Alzheimer's Disease and Other Dementias·Perry EdelmanGregory A Kyrouac
Jun 13, 2003·Journal of Geriatric Psychiatry and Neurology·Quentin TurnbullSuzanne Holroyd
Sep 14, 2004·American Journal of Alzheimer's Disease and Other Dementias·Ronald D AdelmanErika Friedmann
May 8, 2002·International Journal of Geriatric Psychiatry
May 3, 2014·International Psychogeriatrics·Maree MastwykBriony Dow
May 22, 2018·Alzheimer's & Dementia : Diagnosis, Assessment & Disease Monitoring·Shana D StitesJason Karlawish
Sep 1, 2016·Irish Journal of Psychological Medicine·R M VaughanP Dodd
Oct 1, 2008·Dementia & Neuropsychologia·Irina Raicher, Paulo Caramelli
Aug 28, 2018·Journal of Gerontological Nursing·Sarah Chimbanga

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