"What do you think about genetic medicine?" Facilitating sociable public discourse on developments in the new genetics

Science, Technology & Human Values
I BarnsR Shaw

Abstract

An important aspect of any meaningful public discussion about developments in gene technology is the provision of opportunities for interested publics to engage in sociable public discourse with other lay people and with experts. This article reports on a series of peer group conversations conducted in late 1996 and early 1997 with sixteen community groups in Perth, Western Australia, interested in gene therapy technology. With the case of cystic fibrosis as a particular focus, and using background resource material as a stimulus for discussion, the participating groups explored a range of value issues arising from the new genetic medicine. This more discursive context enabled participants to express a number of background or life-world concerns about genetic medicine, concerns that are often obscured by the dominant biomedical and bioethical discourses.

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Citations

Jun 14, 2005·Fertility and Sterility·Andrea L KalfoglouKathy Hudson
Oct 24, 2006·Epilepsia·Sara Shostak, Ruth Ottman
Nov 4, 2004·Social Science & Medicine·Benjamin R BatesCeleste M Condit
Jun 10, 2017·Public Understanding of Science·Afke Wieke BettenFrank Kupper
Feb 20, 2004·Public Understanding of Science·Heather Dietrich, Renato Schibeci
May 13, 2011·Public Understanding of Science·Bill Doolin, Judy Motion
Apr 13, 2005·Public Understanding of Science·Benjamin R Bates
Oct 5, 2001·Nature Reviews. Genetics·C Condit
Sep 23, 2003·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Jennifer L BevanCeleste M Condit

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