What happens after James Lind Alliance Priority Setting Partnerships? A qualitative study of contexts, processes and impacts

Research Involvement and Engagement
Kristina StaleyTrisha Greenhalgh

Abstract

The James Lind Alliance (JLA) supports priority setting partnerships (PSPs) in which patients, carers and health professionals collaborate to identify a Top 10 list of research priorities. Few studies have examined how partnerships plan for the post-prioritisation phase, or how context and post-PSP processes influence the fortunes of priorities. This evaluation aimed to explore these questions. We selected a diverse sample of 20 interviewees who had knowledge of 25 PSPs. Thirteen interviewees had led a PSP, either from a university, patient organisation or charity. Three were patients who had taken part in a PSP workshop. Four others, three researchers and one funder, had worked with JLA PSP priorities to develop research proposals. We analysed the data thematically, exploring how success was understood and achieved. The JLA PSPs had different histories, funding sources, goals and stakeholders. Whilst their focus was on generating priority research topics, PSPs' wider impacts included enhanced status and greater confidence for individuals, as well as relationship-building and network strengthening for the organisations involved. To follow through on a Top 10, additional work was needed to refine broad priority topics into resea...Continue Reading

References

Dec 3, 2014·Seminars in Dialysis·Lianne BarniehBrenda Hemmelgarn
Aug 16, 2017·Health Research Policy and Systems·Trisha GreenhalghUNKNOWN Partnerships for Health, Wealth and Innovation cross-cutting theme of the National Institute for Health Research Biomedical
Nov 7, 2017·Canadian Urological Association Journal = Journal De L'Association Des Urologues Du Canada·Jennifer JonesMichael A S Jewett
Nov 18, 2017·Head & Neck·Leah A LecheltUNKNOWN Alberta Head and Neck Cancer Priority Setting Partnership Steering Committee
Sep 2, 2019·BMJ Open·Agnete NygaardAstrid Bergland

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Citations

Jul 12, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Faith GibsonSusie Aldiss
Oct 31, 2021·Research Involvement and Engagement·Christiane Grill
Nov 9, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Brooke AllemangGina Dimitropoulos

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