What young people with spina bifida want to know about sex and are not being told

Child: Care, Health and Development
C AkreM Rich

Abstract

The aim of this paper was to examine sexual knowledge, concerns and needs of youth with spina bifida (SB) to inform the medical community on ways to better support their sexual health. As part of the Video Intervention/Prevention Assessment (VIA) - transitions, a prospective cohort study, 309 h of video data were collected from 14 participants (13-28 years old) with SB. Participants were loaned a video camcorder for 8-12 weeks to shoot visual narratives about any aspects of their lives. V/A visual narratives were analysed with grounded theory using NVivo. Out of 14 participants, 11 (six women) addressed issues surrounding romantic relationships and sexuality in their video clips. Analysis revealed shared concerns, questions and challenges regarding sexuality gathered under four main themes: romantic relationships, sexuality, fertility and parenthood, and need for more talk on sexuality. Youth with SB reported difficulties in finding answers to questions regarding their sexuality, romantic relationships and fertility. This study revealed a need for help from the medical community to inform and empower youth with SB in the area of sexual health. Through sexual and reproductive health education with patients and parents starting a...Continue Reading

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May 26, 2016·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·Mariel Kupfert HellerAmy C McPherson
Dec 25, 2015·Pediatric Blood & Cancer·E Anne LownBarbara Jones
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Dec 7, 2021·Frontiers in Neurology·Jessica StarowiczLaura Brunton

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