WHY PATIENTS SHOULD BE INVOLVED IN HEALTH TECHNOLOGY ASSESSMENT

International Journal of Technology Assessment in Health Care
Janet WaleLloyd Sansom

Abstract

Some countries make considerable effort to involve patients and patient groups in their health technology assessment (HTA) processes; others are only just considering or are yet to consider patient involvement in HTA. This commentary offers four arguments why patient involvement should be prioritized by those HTA agencies that do not yet involve patients: (1) from a patients' rights perspective, (2) based on patient and community values, (3) centering on evidentiary contributions, and (4) from a methodological perspective. The first argument builds on the Alma-Ata Declaration, which holds that patients have a right and duty to have a say in the planning and delivery of their health care, individually and collectively. Where HTA is used to determine access to technologies and services, we argue that patients have a right to be heard. The second argues that decisions about treatments and services need to be aligned with the core values and morals of the patients whom the health system serves. The third argues that patients have unique knowledge and insights about living with a health condition and their needs for services and treatments regarding that condition, which can add to the knowledge base and value of the HTA process. Th...Continue Reading

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Citations

May 8, 2020·International Journal of Technology Assessment in Health Care·Janet L Wale, Melissa Sullivan
Feb 16, 2020·Journal of Bioethical Inquiry·Narcyz GhineaIan Kerridge
May 19, 2019·The European Journal of Health Economics : HEPAC : Health Economics in Prevention and Care·Fanni RenczPeter L Lakatos
Mar 23, 2021·International Journal of Technology Assessment in Health Care·Cedric GesbertMarie-France Mamzer
Mar 23, 2021·International Journal of Technology Assessment in Health Care·Hanin Farhana KamaruzamanMohd Aminuddin Mohd Yusof
Jun 2, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Kaying KanTalitha L Feenstra
Jun 16, 2021·Journal of Health Organization and Management·Jessica PaceWendy Lipworth
Sep 18, 2020·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Rebecca E MercerKelvin K W Chan

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