Why Patients With Glaucoma Lose Vision: The Patient Perspective

Journal of Glaucoma
Paula A Newman-CaseyPaul P Lee

Abstract

To explore why glaucoma patients believe that glaucoma continues to cause vision loss despite the availability of effective treatment. Nine focus groups were conducted in 3 geographically and ethnically diverse areas of the United States (Los Angeles, CA; Rochester, MN; Durham, NC) that included 56 participants, 31 with poor vision and 25 with good vision. Content analysis was used to identify important themes. Semiquantitative analysis was used to measure the frequency of each theme. A total of 474 relevant comments were made in the 9 focus groups. Focus groups elicited 305 comments about barriers to glaucoma management including issues with adherence (30%), the doctor-patient relationship (21%), knowledge about glaucoma (19%), personal support systems (19%), and barriers to health care delivery such as cost and insurance (11%). A total of 101 comments were made regarding feelings about glaucoma and 58 comments were made regarding beliefs about disease and treatment. These focus groups brought up many issues surrounding barriers to glaucoma treatment, perceived susceptibility to glaucoma, perceived benefits to treatment, and the emotional response to living with glaucoma. There is a need to create a more comprehensive chronic ...Continue Reading

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References

Aug 15, 1993·American Journal of Ophthalmology·W C StewartG Sethuraman
Nov 7, 2002·Journal of Ocular Pharmacology and Therapeutics : the Official Journal of the Association for Ocular Pharmacology and Therapeutics·Sarah A TaylorRichard P Mills
Oct 2, 2003·Journal of Glaucoma·James C TsaiJames W Pichert
Apr 21, 2005·Health Affairs·Dana Gelb SafranWilliam H Rogers
Feb 21, 2006·The British Journal of Ophthalmology·H A Quigley, A T Broman
Mar 14, 2007·Archives of Ophthalmology·Paul P LeeDavid W Parke
Nov 6, 2009·Patient Education and Counseling·Tricia S TangJacob E Kurlander
Jan 16, 2010·Journal of Glaucoma·Jo Ellen StrykerKaren Glanz
Mar 10, 2010·Scandinavian Journal of Caring Sciences·Jaana LunnelaHelvi Kyngäs
Dec 9, 2010·European Journal of Ophthalmology·Gemma C M RossiPaolo Emilio Bianchi
May 26, 2011·The British Journal of Ophthalmology·Betsy SleathAlan L Robin
May 31, 2012·Journal of Health Care for the Poor and Underserved·Oni J BlackstockOladipo A Alao
Feb 5, 2013·Patient Preference and Adherence·Heather WatermanFiona Spencer
Jul 23, 2013·Optometry and Vision Science : Official Publication of the American Academy of Optometry·Laura E DreerCynthia Owsley

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Citations

Jan 17, 2020·Ocular Immunology and Inflammation·Hedayat JavidiPhilip I Murray
Aug 3, 2020·Journal of Glaucoma·Facundo G SanchezPaula A Newman-Casey
Nov 12, 2020·Clinical Ophthalmology·Alan R Morse, William H Seiple
May 14, 2021·Ophthalmology. Glaucoma·Brian C StaggPaul P Lee

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