Why should we care about quality of life in persons with haemophilia?

Haemophilia : the Official Journal of the World Federation of Hemophilia
L AledortHealth Related Quality of Life Expert Working Group of the International Prophylaxis Study Group

Abstract

The very high cost of haemophilia care, including the increase in use of factor prophylaxis in both children and adults requires that funders of clotting factor concentrates require objective measures of health, such as joint status and quality of life (QOL). Many clinical trials, especially those for licensing of new products, are including QOL instruments in their protocols to evaluate the patients' perspective of wellbeing before and during therapy. This article gives a perspective on QOL the importance of QOL measurement in the field of haemophilia and its impact on patient outcome.

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Citations

Oct 31, 2015·Haemophilia : the Official Journal of the World Federation of Hemophilia·R B ButlerA D Forsberg
Jun 25, 2015·Haemophilia : the Official Journal of the World Federation of Hemophilia·A R LangleyV Blanchette
Jun 29, 2012·Haemophilia : the Official Journal of the World Federation of Hemophilia·Mark W Skinner
Jul 22, 2014·Haemophilia : the Official Journal of the World Federation of Hemophilia·T de JagerM Karimi
Jun 27, 2014·European Journal of Haematology·Jennifer PocoskiRahul Sasane
Nov 21, 2013·Haemophilia : the Official Journal of the World Federation of Hemophilia·R DolatkhahM Gholchin
Feb 6, 2015·Transfusion·Benoît PolackUNKNOWN EQOFIX Study Group
Sep 2, 2016·Haemophilia : the Official Journal of the World Federation of Hemophilia·M RechtS Pipe
Mar 31, 2018·Haemophilia : the Official Journal of the World Federation of Hemophilia·J Koeberlein-NeuT Hilberg
Apr 18, 2019·Haemophilia : the Official Journal of the World Federation of Hemophilia·Ana Torres-OrtuñoJosé Antonio López-Pina
Dec 10, 2013·Hematology·Neil Josephson
Jan 28, 2020·Psychology, Health & Medicine·Luca NegriAntonella Delle Fave
Apr 16, 2020·Haemophilia : the Official Journal of the World Federation of Hemophilia·Wolfgang MiesbachJörg Schüttrumpf
Sep 1, 2015·Haemophilia : the Official Journal of the World Federation of Hemophilia·T LissitchkovJ Oldenburg
Dec 28, 2016·Haemophilia : the Official Journal of the World Federation of Hemophilia·S von MackensenK W Wyrwich
Apr 30, 2017·Haemophilia : the Official Journal of the World Federation of Hemophilia·T LissitchkovK J Pasi
May 21, 2020·Haemophilia : the Official Journal of the World Federation of Hemophilia·Xuewen SongRenchi Yang
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Jan 30, 2016·Haemophilia : the Official Journal of the World Federation of Hemophilia·K KavakliP Rendo
May 13, 2020·Haemophilia : the Official Journal of the World Federation of Hemophilia·Catherine LambertCedric Hermans
Aug 25, 2017·Journal of Thrombosis and Haemostasis : JTH·M J Manco-JohnsonW Hong
Jan 29, 2019·Haemophilia : the Official Journal of the World Federation of Hemophilia·Iffet YaziciogluMuharrem C Doğan
Sep 19, 2019·Haemophilia : the Official Journal of the World Federation of Hemophilia·Erna C van BalenRichard Sawatzky
Oct 25, 2013·British Journal of Nursing : BJN·Kate Khair
Feb 29, 2020·Research and Practice in Thrombosis and Haemostasis·Christian QvigstadUNKNOWN ADVANCE Working Group
May 26, 2017·Haemophilia : the Official Journal of the World Federation of Hemophilia·N SidharthanA Sudhakar
Dec 6, 2020·Haemophilia : the Official Journal of the World Federation of Hemophilia·Richa MohanSandip Anand
May 1, 2021·International Journal of Clinical Pharmacy·Martina BagoSilva Zupancic Salek

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