Women's experiences of diagnosis and management of polycystic ovary syndrome: a mixed-methods study in general practice.

The British Journal of General Practice : the Journal of the Royal College of General Practitioners
Sarah C HillmanJeremy Dale

Abstract

Polycystic ovary syndrome (PCOS) is a common lifelong metabolic condition with serious associated comorbidities. Evidence points to a delay in diagnosis and inconsistency in the information provided to women with PCOS. To capture women's experiences of how PCOS is diagnosed and managed in UK general practice. This was a mixed-methods study with an online questionnaire survey and semi-structured telephone interviews with a subset of responders. An online survey to elicit women's experiences of general practice PCOS care was promoted by charities and BBC Radio Leicester. The survey was accessible online between January 2018 and November 2018. A subset of responders undertook a semi-structured telephone interview to provide more in-depth data. A total of 323 women completed the survey (average age 35.4 years) and semi-structured interviews were conducted with 11 women. There were five key themes identified through the survey responses. Participants described a variable lag time from presentation to PCOS diagnosis, with a median of 6-12 months. Many had experienced mental health problems associated with their PCOS symptoms, but had not discussed these with the GP. Many were unable to recall any discussion about associated comorbidi...Continue Reading

References

Apr 3, 2007·Fertility and Sterility·Elizabeth HollinrakeAnuja Dokras
Jul 8, 2011·The Cochrane Database of Systematic Reviews·Lisa J MoranHelena J Teede
Dec 3, 2016·The Journal of Clinical Endocrinology and Metabolism·Melanie Gibson-HelmAnuja Dokras
Feb 15, 2019·European Journal of Endocrinology·Balachandran KumarendranKrishnarajah Nirantharakumar
Mar 7, 2019·Journal of Medical Internet Research·Shannon K BennettsAmanda R Cooklin

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Citations

May 2, 2020·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Ben BowersStephen Barclay
Sep 30, 2021·Clinical Endocrinology·Alexia S PeñaMelanie Gibson-Helm

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