You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities

Disability and Health Journal
Katherine E McDonald, Erin Stack

Abstract

Community-based participatory research (CBPR) seeks to improve the responsiveness of science to community priorities and foster positive community change through equitable research collaborations between scientists and community members. CBPR resonates with disability rights principles, and is increasingly being used in disability research, though there are few studies of its use with people with developmental disabilities. We conducted a prospective qualitative study to explore the experiences of scientists and community members in a multi-year CBPR project with people with developmental disabilities. Over the four project years, we conducted periodic individual interviews and focus groups with members of the CBPR project, and used an inductive thematic analysis to identify and develop relational themes. We identified factors that contributed to the success of the CBPR project and factors that presented challenges to the CBPR project. We also identified potential individual, project, and societal level impacts of the CBPR project. CBPR with people with developmental disabilities is possible and fruitful, and can serve as an effective model for the full inclusion of people with developmental disabilities in science and society ...Continue Reading

References

Jul 27, 2004·Health & Social Care in the Community·Tony Gilbert
Aug 23, 2008·American Journal of Preventive Medicine·Daniel StokolsRichard P Moser
May 31, 2011·Progress in Community Health Partnerships : Research, Education, and Action·Christina NicolaidisAmanda Baggs
Oct 19, 2013·American Journal of Public Health·Katherine E McDonald, Dora M Raymaker
Jun 21, 2014·Disability and Health Journal·Mary OschwaldUNKNOWN Partnering with People with Disabilities to Address Violence Consortium
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Sep 29, 2015·Progress in Community Health Partnerships : Research, Education, and Action·Christina NicolaidisUNKNOWN Partnering with People with Disabilities to Address Violence Consortium

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Citations

Jun 14, 2017·Intellectual and Developmental Disabilities·Lauren ClarkErin Johnson
Aug 11, 2018·Autism : the International Journal of Research and Practice·Sue Fletcher-WatsonElizabeth Pellicano
Dec 27, 2018·International Journal of Environmental Research and Public Health·Nicolette I Teufel-ShoneCarmenlita Chief
Apr 4, 2019·Autism : the International Journal of Research and Practice·Christina NicolaidisAndrea Joyce
Dec 5, 2018·Philosophical Transactions of the Royal Society of London. Series B, Biological Sciences·Claus-Jürgen Schulz, Miguel Cañedo-Argüelles
Jul 17, 2018·Journal of Applied Research in Intellectual Disabilities : JARID·Annabel FolchMaria José Cortés
Aug 11, 2020·Alzheimer's & Dementia : Diagnosis, Assessment & Disease Monitoring·Benjamin L HandenUNKNOWN Alzheimer's Biomarker Consortium‐Down Syndrome (ABC‐DS)
Mar 12, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Marissa BirdSandra L Carroll
Oct 22, 2020·Journal of Applied Research in Intellectual Disabilities : JARID·Winnie Mai ZhaoDenise DuBois
May 29, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Catherine BodenChristine Stobart
Jul 18, 2021·Journal of Applied Research in Intellectual Disabilities : JARID·I-Ting HwangJessica M Kramer
Sep 25, 2021·Journal of Applied Research in Intellectual Disabilities : JARID·Katherine E McDonaldRobert S Olick

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