"Your Place or Mine?" Priorities for a Specialist Teenage and Young Adult (TYA) Cancer Unit: Disparity Between TYA and Professional Perceptions

Journal of Adolescent and Young Adult Oncology
Rachel M TaylorFaith Gibson

Abstract

To identify key components of a specialist teenager and young adult (TYA) cancer unit from the perspective of young people and health professionals. A facilitated workshop was held in England at which participants prioritized 15 core features of a specialist cancer unit identified in a literature review. Themes were transferred onto cards and organized using a pyramid. Notes were made of the discussion and how decisions were reached. The exercise was repeated in a survey at a patient conference. Data were analyzed by weighting the ranked position and by content analysis. Eleven young people and 22 health professionals attended the workshops, and 64 young people completed the survey. Young people's top three priorities were a dedicated unit, contact with peers, and provision for partners/parents to live in the unit with them. Health professionals prioritized best chance of survival and best quality of life, access to expertise, access to computers/Internet, and age-appropriate equipment. Priorities varied across and within healthcare professionals and young people, and were dependent on viewpoint and personal experience. This is an essential first step toward a fuller description of the benefit of specialist TYA cancer services ...Continue Reading

References

Dec 4, 2003·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·J Whelan
Dec 4, 2003·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Myrna Whiteson
Aug 30, 2005·Annals of Emergency Medicine·UNKNOWN National Institute of Neurological Disorders Stroke rt-PA Stroke Study Group
Dec 20, 2005·Psycho-oncology·Wendy MitchellPatricia Sloper
Jun 24, 2006·The Oncologist·Archie BleyerRonald Barr
Feb 9, 2007·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Sam SmithMyrna Whiteson
Jun 11, 2008·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Brad Zebrack
Jul 24, 2008·Journal of Cancer Survivorship : Research and Practice·Brad J ZebrackTammy S Weitzman
Aug 30, 2008·British Journal of Cancer·J M BirchT O B Eden
Jan 22, 2010·European Journal of Cancer Care·L Wicks, A Mitchell
May 1, 2010·International Journal of Nursing Studies·Faith GibsonAlison Richardson
May 26, 2010·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Sue MorganMeg Plaster

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Citations

Dec 19, 2015·Oncology Nursing Forum·Laila M WaznehCarmen G Loiselle
Aug 8, 2015·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Rachel M TaylorLorna A Fern
Mar 28, 2018·Journal of Adolescent and Young Adult Oncology·Kimberly PeetersAnn Heylighen
Feb 14, 2018·Journal of Adolescent and Young Adult Oncology·Steve MarshallMark Limmer
Aug 30, 2018·Journal of Adolescent and Young Adult Oncology·Steve MarshallMark Limmer
Mar 23, 2019·Journal of Adolescent and Young Adult Oncology·Rebekah E Tennyson, Helen C Griffiths
Jul 29, 2015·Health and Quality of Life Outcomes·Rachel M TaylorJeremy S Whelan
Jan 5, 2019·Research Involvement and Engagement·Rachel M TaylorUNKNOWN Core Consumer Group (CCG) and National Cancer Research Institute Teenage and Young Adult Clinical Studies Group (NCRI TYA CS
May 21, 2019·European Journal of Cancer Care·Sarah LeaRachel M Taylor
Apr 13, 2021·Journal of Adolescent and Young Adult Oncology·Anne Marie Roholm OlesenKirsten A Boisen

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